September 8, 2025

Monday, September 8, 2025

Monday, September 8, 2025 -- Mattie died 16 years ago today. 

Tonight's picture was taken in October of 2007. To me this is the quintessential Mattie photo! I remember snapping it at Butler's Orchard in Maryland. Mattie loved going to this farm in the fall, because they had hayrides out to the pumpkin patch, where Mattie checked out the vines and pick out one of those wonderful orange orbs! I thought we would have many more Falls like this, but unfortunately the following October, Mattie was enduring chemotherapy. 


Quote of the day: In the garden of memory, in the palace of dreams…that is where you and I shall meet. ~ Alice Through the Looking Glass


Last night, after I got my parents to bed, I went into my bedroom. It was lit up like a Christmas tree, accept there were NO LIGHTS ON! It was Mattie Moon, shining right into my bedroom. You can see the light on my bedroom floor. So I walked over to the window and looked up! There it was.... a huge Mattie Moon. 

I think this full moon was not a coincidence! It was a message to me from Mattie. What better way for him to tell me that he is with me, than shining brightly down on me on the eve of the anniversary of his death!

Mattie Moon aglow last night!

Perhaps it was the fact that today Mattie is gone 16 years from my life, or all the many things I am facing and juggling..... but all I know is I did not sleep well last night. When I woke up this morning, I was deeply grateful to receive text messages and emails from friends. There is a very comforting feeling to know that Mattie isn't forgotten and that my forever loss was acknowledged!

After I dropped my dad off at his memory care center this morning, I came home and did some work. Then the doorbell rang. But it was a strange ring. So I went to check it out. The surprise was receiving Mattie themed flowers from my amazing friend in Missouri. I am a big Gerber daisy fan and of course seeing all that orange, was a definite tribute to Mattie (whose favorite colors were orange and red!). Ironically I have never met my friend in person, yet through 17 years of blogging, we have become forever friends. For which I am grateful. 

In a way, receiving these flowers today, helped me see that I have a doorbell issue. A big one. I called up the company, who had me on the phone for 90 minutes, and then another hour this evening. Turns out they now see I am right.... there is NO fixing this thing, it has to be replaced. The list of issues for me just continue to grow. 

Tomorrow, I am hoping that Mattie is looking out for me, because I will find out where the leak in the pool is coming from. Here's the kicker, the company called me today and asked me to fill the pool back up! That if it isn't filled, the dye and other devices they put in the pool won't work! So for six hours, I have been refilling the pool. This brings me NO HAPPINESS! 

I did take my mom out for tea today, and while out, I looked around me and all I could see or perceive to see, were normal and happier people than me. People who do not seem to be carrying the weight of the world on their shoulders. OF COURSE I am generalizing, because everyone faces something. But I guess in my context of it being the anniversary of Mattie's death.... my world seems to have stopped spinning, but the rest of the world keeps functioning. People are not as devastated by this as I am, and I would say this is the one thing about grief. It plays mind games with you, because it is very disorienting to see how your world has changed forever and yet what is crushing to you, doesn't appear to have the same affect on others. It is humbling! 

During difficult times, Mattie always asked me to recount the story about the day he was born! The last time I told him the story below was on August 5, 2009, the day I found out that his cancer had metastasized. He and I were waiting for results in the hospital rose garden and somehow Mattie knew something was very wrong. So he literally crawled out of his wheelchair and sat on my lap. It was at that point, he asked for the story! I knew the story he was referring to, the story I never got tired of telling. In honor of Mattie, his amazing life, and for all that he brought to my life, I share this Dearest Mattie story with you (a story that was on display at his celebration of life event in October of 2009). 

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My Dearest Mattie,

It is said that parents love their children right from the moment they are born. However, in your case, my love for you began as soon as I learned I was going to have a baby. In fact, right after seeing your sonogram picture, I felt like a proud parent. I posted those pictures everywhere. I shared these pictures with practically anyone who would listen or showed interest, and each September when I taught prenatal development in my undergraduate human development class, out would come your sonogram pictures to illustrate my points. Even my students got a sneak peek at our baby, a baby who would have a profound and meaningful impact on not just his parents but also every community he touched. I did not only love you, I FELL IN LOVE with you, and that love grew stronger with each day. Your energy, spirit, love for life, intellectual challenges, sense of humor, and loyalty to your friends and family were only some of the wonderful traits I always admired in you.

This video is a tribute to you and your wonderful, yet short life (it is the video at the top of the blog). It seems fitting as we celebrate you, and say good-bye to your physical presence that I share the story about how you entered the world. The story of your birth had to be one of your most favorite stories to hear, and I found during times when you were reflective, overly tired, or in need of hugs and tenderness, the request for this story arose. In fact, I remember on August 5th, the day I found out that your cancer metastasized everywhere, you and I were sitting in the hospital’s rose garden, and you requested the story. It was almost as if you knew this was going to be a bad day, so in essence we might as well brace ourselves, cuddle, and prepare for this together.

Here is the story I always shared with you. A story I will never forget. On April 2, 2002, at 11pm, I decided to head to bed. I was anxiously awaiting your birth, and as your due date approached, I couldn’t help but wonder, when will “the baby” be coming? I was restless and uncomfortable, so while in bed, I began to watch television. I was having trouble concentrating on what I was hearing, mainly because you were kicking up a storm inside of me. At which point, the kicking became so intense, that I literally felt something pop. You clearly wanted OUT, and you were going to kick your way into the world on your terms. Naturally after feeling this pop, I looked down at my tummy, and when I jumped out of bed, I realized my water had broken. This only happens to 25% of moms, and in retrospect, I should have guessed that this was just the beginning of how different our lives were going to be together. I immediately called the doctor and told her what happened. She asked if I was in pain, which I wasn’t, and she instead told me to get a good night’s rest, because my baby was going to be born the following day. Well I can assure you after hearing this news, sleeping was the farthest thing from our minds.

So on April 3, 2002, I headed to the hospital and was admitted to the maternity unit at 8am. The labor process began, but it was a VERY slow process for me, and at times as you moved inside my tummy, your dad could see your head pushing against my backbone. Needless to say Dr. Mike, the anesthesiologist, became my favorite doctor that day. The hours kept rolling by, and still there was NO sign of our baby! I was getting weaker, I developed an 102 fever, and by 11pm I really had no energy to give birth to you. In addition, to how I was feeling, your oxygen supply was getting cut off, and your chin was positioned in such a way that would make the birthing process almost impossible. So it was at that point that the doctor recommended an emergency c-section. Things began to happen very quickly around me. I was signing paperwork for surgery and your dad was being transformed by putting on a bunny suit so he could enter the operating room.

I had never been in an operating room before in my life, but I really wasn’t concerned at that point about myself. I was solely focused upon you. I was wide-awake for the c-section, but unable to see the process, which as you know, was probably a good thing. Your dad on the other hand found the whole thing very exciting, and began to videotape and take pictures of the surgery. Literally a team of people surrounded me and I will never forget Dr. Mike, the anesthesiologist who sat by my side, and talked with me and did whatever he could to keep me pain free.

When you have a c-section, your arms are strapped to the operating table, so I couldn’t move, and directly over my head was what appeared to be a rope with a clamp that was holding open my abdominal cavity. Normally by this point I would have passed out, but when it came to you, I developed strength I never knew I had. As the doctor began cutting, and finally got to you, the first thing she said was, “what is this?” That is NOT what you typically hope to hear when having a c-section. The doctor let me know that I had a grapefruit sized tumor on my bladder, and my immediate thought was, did this affect the baby? The next thing I knew, I felt her tugging, and I heard the loudest cry ever. Now here is the part of the story that I know was always your FAVORITE! I would always try to replicate the sound I heard coming from you that day, a sound that will always remain in a parent’s ear. It was a very large WAAHHH! WAAHHH! At which point the doctor told us two things: first, that you were one of the most beautiful babies she had ever seen, and second, that you had quite a set of lungs on you! I concurred with both statements.

The doctor then brought you over to me, and she felt that I needed to be the first person to touch you. So despite my arms strapped to the table, my right hand miraculously reached out and grabbed your tiny, soft, and cute foot. It was a moment I will always cherish, a moment in which I will never forget, and a moment I am so happy you too enjoyed hearing about. Each time I retold the story I felt as if it further bonded us together, and I always enjoyed hearing your comments, thoughts, and reactions to your story.

Seeing you made your dad very happy! After the c-section, I had to have bladder surgery to remove the tumor, so your dad stayed with you and accompanied you to the nursery. I learned that you weighed 6 pounds and 13 ounces, and that you had high Apgar scores of 8 and 9. 

Your presence is so greatly missed. Nothing seems the same, is the same, looks, feels, or tastes the same without you in our lives. May you always know that your mom loves you, cherishes you, and that feeling will remain with me forever and always. Good-bye my Mooshi Moo angel. With love from Una Moon!

September 7, 2025

Sunday, September 7, 2025

Sunday, September 7, 2025

Tonight's picture was taken on September 8, 2009, the day that Mattie died. I wanted to capture Mattie's precious foot. Mattie's death was not peaceful, instead it was traumatic. Fraught with intense pain, gasping for air, and his bed looked like a crime scene for five to six hours. There wasn't enough pain meds that could be injected into his IVs. Which was why, Mattie's doctor eventually prescribed a lethal dose of propofol to aide in his death. When I tell you this will live within me forever, I am not kidding. While the propofol was being injected into Mattie, I was holding him in my arms. Within a minute, his body went limp and the monitor behind me flat lined.  FLAT LINED.....The most horrific sound a mother could ever hear! 


Quote of the day: The reality is that you will grieve forever. You will not 'get over' the loss of a loved one; you will learn to live with it. You will heal and you will rebuild yourself around the loss you have suffered. You will be whole again but you will never be the same. Nor should you be the same nor would you want to. ~  Elisabeth Kubler-Ross


Tomorrow, September 8, will mark the 16th anniversary of Mattie's death. 16 years! How on earth is that possible!? Mattie has been dead twice as long as he has been alive. Truly it is too much to bear, and anyone who thinks a mom gets over the traumatic loss of her child is 100% wrong. I know my friends wanted me to return back to the way I was after Mattie died, and I suppose within their reflections they were trying to give me hope. But the reality is this..... platitudes, niceties, and the Disneyland view of the world doesn't work for bereaved parents. 

The only way to help a grieving mom, is for you to find the inner strength to sit with her in this grief. It means hearing over, and over, and over again her stories, her fears, her tears, and her sadness. Frankly it is a place that is hard to be in and the depths of this loss are truly overwhelming for most people. I say this because I lost many close friends over the death of Mattie. My life was too much for them, and as one friend told me, her family encouraged her to end our friendship after 15 years because it was making her sick (knowing what happened to Mattie). 

I went back to my blog posting from September 7, 2009, the day before Mattie died. I copied and pasted a portion of the blog below. What surprised me was reading my words from 16 years ago, they truly struck me. These words hit me emotionally, because it transported me right back in time and I could feel the fear, despair, and depression in my words. That blog posting brought me to tears. When I wrote it, I did not know Mattie was going to die the next day. In retrospect, since I reported that Mattie's nurses came in to say good-bye to him, I should have put two and two together. But I didn't! Maybe I just couldn't! With Mattie's journey we had two modes.... fighting for a cure and then helping him die. There was no time in between to process anything, to find equilibrium, which I think made it very hard to transition from a cure to death. 

At the end of the blog posting, I mention that we were gifted a family beach trip in September of 2009. Honestly if I did not write about it, I would NEVER have remembered that gift. The gift is a blur to me, but what that gift tells me now is even Mattie's treatment team did not think Mattie's cancer was going to metastasize six weeks off of chemotherapy. I think they thought we would have more time together before a cancer recurrence. 

Before leaving you with my words from 2009, I feel it is important to state that one of the things that comes through in that blog post is the incredible support community that surrounded us. Mattie had the BEST nurses! They became our family for 14 months and the blog comments from friends highlight how thousands of people walked this heart wrenching journey with us. To those of you who have been with me since 2008.......... THANK YOU, for those of you who are just tuning in, thank you for joining my Mattie blog family. 


BLOG POSTING from ---- September 7, 2009 

Our day started out with a sad scene. Mattie's fish, the special gift my parents got Mattie yesterday, died! I knew this was an ominous sign today!

Mattie had a very difficult start to the day. His blood pressure has been dropping and is dangerously low, and he had a coughing fit, which left him gagging and unable to catch his breath. He was deathly scared, and when Dr. Shad and Kathleen (Mattie's outstanding HEM/ONC nurse) saw him, they mobilized into action. In reality what happened next moved so fast, it was almost a blur. Mattie was in minutes being pumped up with pain medications and Versed (for anxiety). Now that I can reflect on the morning, I am so thankful we are in the hospital. Because Mattie couldn't possibly be cared for humanely at home based on the symptoms he is presenting. It is ironic that Mattie seemed to know this, and had a better feeling for his condition and his decline than us. Once Mattie received all this medication, he asked if I could snuggle with him, which I happily did. However, Mattie is being kept in a comfortable state, so therefore he really isn't talking and spends a lot of time sleeping. The Mattie we knew is NO longer!

Dr. Shad came to the hospital early because she felt that the end was near for Mattie. She stayed at the hospital all day, and we had a great deal of support from the HEM/ONC nurses (Kathleen, Tricia, and Miki). This whole scene of watching Mattie slowly dying is heart wrenching and at the same time surreal. How can my healthy, active, bright, and spunky son be dying? I see it happening, but it is SO hard to accept!

We spent a great deal of time today monitoring Mattie and also talking with him. In fact, when everyone was visiting, we had solemn moments, but also moments of laughter. Laughter because Mattie was a very humorous fellow! Kathleen told me that the nurses love Mattie, but they also love us. That Mattie has left a legacy, and his love will always live on within us. Mattie did not go to school this past year, but in a way he went through the hardest school of all. The school of cancer, which shows you the most vulnerable and raw sides of life. In fact, it has left me so raw, that I emotionally am not the same person anymore.

Mattie's nurses all came in tonight at their shift change to kiss and say good-bye to Mattie! It was very touching. Kathleen told me that even though Mattie isn't awake, he can hear us, and that he worries about us and is holding on because he knows we do not know how to say good-bye to him. So tonight, we mustered the energy to talk with Mattie together. We told him we loved him, were proud of him, that he did a great job fighting the cancer, but now he is in control and can decide when he has had enough and wants to rest. That we will be okay, and that we will always, always love him. We told him that we couldn't have asked for a better son, and that he was going to a place where he would be at peace, able to run and play, and meet up with family members and friends who love him but whom he has never met. My sign off tonight, as it always is to Mattie was, "Una Moon loves Mooshi Moo." Mattie coined the nickname, Una Moon for me, and he is my Mooshi Moo.

It is hard to say how long Mattie will be with us. It could be hours or days. But it is no longer weeks! His whole disease has been one crisis after another. His cancer required three major surgeries, 11 months of chemotherapy, and intensive physical therapy. However, there was NO break between treatment and recurrence. In addition, even death is not an easy process for Mattie. It has hit him hard and hasn't given us the chance to talk as a family. This year has left me shell shocked, questioning everything about life and the future, and the true purpose for our lives. Mattie is being kept comfortable, which is a blessing, because the sounds coming out of his body and lungs are frightening. I doubt we will sleep at all tonight! I am saddened that Mattie will be unable to go on a planned beach trip that the Lombardi Clinic arranged for us on September 13 through the Foundation, Believe in Tomorrow. It wasn't meant to be clearly. One thing I do know is I hate Osteosarcoma with every fiber of my being. I have seen Mattie suffer way too much this year, and this suffering will always remain a part of us.