Mattie Miracle -- 16 Years of Service

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

June 10, 2025

Tuesday, June 10, 2025

Tuesday, June 10, 2025 -- Mattie died 798 weeks ago today.

Tonight's picture was taken in June of 2008. Mattie received this remote controlled boat and that day we took him to Roosevelt Island so he could maneuver the boat on the water. Mattie was fascinated with boats, boats of all kinds! If you asked him what he was saving his money for, he'd tell you..... for a boat. Not a toy boat, but a real one! Mattie's dream was to be a captain of a ship! I am so glad that Roosevelt Island was close to our home and that we had this wonderful escape on the weekends! So much was learned together on the Island. 



Quote of the day: Betrayal is never easy to handle and there is no right way to accept it. ~ Christine Feehan


This morning did not go any way to plan. But then again, it never does in my house! One of the positives was I received an email from Nate, the power washer professional who was been working with me since March. It is hard to make ALL the decisions in this house on my own. I am responsible for so many things, and have no one to bounce thoughts and ideas off of. So when Nate wrote today, I showed him a BEFORE photo of the flagstone! This was what I have been seeing for years! This greyish/black stone! I snapped this photo in March 2025. To me this was a depressing sight! 






I then sent Nate this after photo! I am still amazed at the difference. Nate told me that most people do not even bother to clean their stones unless they are selling their house. He told me that when owners see the transformation, they usually say..... why didn't I do this sooner? 

What I know is this house is important to me, and anything that is important to me, gets taken care of very well! My goal is to tackle projects one at a time, to restore parts of the house back to their original glory. When I wonder.... did I make the right decision about power washing, the answer was YES!

At around 9am, I got an alert on my phone about the house's alarm system. The message was that the battery was running low! TRULY I had NO IDEA what that even meant. I stopped what I was doing and ran to my computer and then called the company. The woman was lovely and explained the issue, she is sending me a replacement battery, and then I elected to install it myself. I will either watch the installation video, or call the company and have them walk me through how to do this over the phone. There is no way I am paying for someone to come to the house to install a battery! I figure if I can learn to flush a sump pump, manage a septic system, handle basic electricity and plumbing, I should be able to figure out a battery replacement! 

Once I dealt with that crisis, I moved onto the next problem. My garage door has been having issues! Significant enough that I was worried that I wouldn't be able to open it! The garage is crucial, because this is the easiest way for me to safely get my parents in and out of the house. So my garage door has to function. I decided to call the Overhead Door Company! On an aside, I think I could make a HOW TO guide for all women at this point, on how to manage a house! 

This garage door company, I feel, is the best in our area! They give you same day appointments, their service providers are always excellent, efficient, they listen, and explain things in an understandable manner! Any case, multiple issues needed to be addressed (tighten a drive belt, secure loose boom bracket, adjusted tension on springs, secured loose safety sensors, lubricated door, etc) and what I learned was I was smart to address this issue now before the many issues got worse. If I waited more damage would have been done and the repair would have been more costly. I appreciated hearing this, it just helped me to know that my instincts regarding house maintenance are correct! As it is, I lubricate all the hinges on the garage door biannually and today I learned this was correct, and then getting a professional to tune up the door every two to three years is perfect. They even gave me a reminder sticker, which I have posted up in the garage, so I know when I should get it serviced next! VERY HELPFUL! I am very grateful to have a wonderful network of men to turn to, because house maintenance is daunting on a good day. 

What I do know is I could never leave my spouse managing the impossible alone. I would be riddled with guilt every minute of the day. Some days the feelings from this abandonment are overwhelming and I am ready to give up and then there are days like today, when I say to myself...... YOU AREN'T going to bring me down. You have done enough damage. I am resourceful, I can advocate for myself and my parents, and I can make intelligent decisions. However, these positive reflections never last long!

No comments: