A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



October 15, 2025

Wednesday, October 15, 2025

Wednesday, October 15, 2025

Tonight's picture was taken in October of 2008. That day, Mattie was admitted to the hospital for his next round of treatment. How do I know? Because Mattie was dressed in real clothes! When we were home, Mattie was fine wearing clothes by day and PJs at night. But when he was living in the hospital, he wanted to wear PJs all day! We went with whatever Mattie wanted! The in-patient child life playroom was having a pumpkin decorating activity that day and Mattie had a great time with all his hospital buddies getting ready for Halloween. I honestly do not know what we would have done without that playroom! It was in that space that Mattie got to be Mattie! 


Quote of the day: Losing someone is like when the sun comes through a window, moving across the room with each hour, until night falls and all you can do is try to remember the soothing shapes it made. ~ Stewart Lewis


It is almost 9pm, and I am worn out on every level. I have been monitoring my dad's back and once again, I am faced with a pressure sore on his rump. This is the LAST thing I needed right now. I am trying to get on top of this before it progresses through the stages, requiring wound care. The last pressure sore my dad had was in Los Angeles and it took 8 months to heal, with weekly nursing visits. 

My dad's memory care center was concerned today and talked to me about the sore. Frankly, their reaction is worse than the actual problem. I shared photos with my dad's doctor and I have a strategy in place to keep the wound clean, putting on zinc oxide and tonight bought wound care foam (something we used in California). Though given the location of the sore, this is a hard place to manage and frankly the main issue is my dad refuses to comply with a walking routine. He is too sedentary, spends way too much time sitting, and putting pressure exactly where the sore is located! I am so exhausted with prodding him to move his body and having to solve every problem that comes before me in this house. Not in a happy place tonight, so I am signing off. 

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