Mattie Miracle -- 16 Years of Service

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

May 20, 2025

Tuesday, May 20, 2025

Tuesday, May 20, 2025 -- Mattie died 795 weeks ago today.

Tonight's picture was taken in May of 2002. Mattie was a month old and fully on! Mattie's car seat was a God sent. It was the only thing I could put Mattie in for a few minutes and he wouldn't fuss. In fact, that car seat also went into his crib. Literally Mattie would get strapped into the seat and then the seat was placed in the crib. Of course that never lasted long, because for the first three months of his life, he slept on top of me. What I learned about Mattie early on was he did not like lying flat! It was a big no no! 


Quote of the day: A river cuts through rock not because of its power but because of its persistence. ~ James Watkins 


After I dropped my dad off at his memory care center, I came home and was determined to call my health insurer! If you have been following along in my Prolia saga, then you will recall I was due to get  this shot in March! We are now at the end of May, and I have still NOT been approved for this drug. I am supposed to get it every six months. Here is the kicker, this same health insurer covered this drug for me over the last two years. I was on my husband's insurance plan, but this January 2025, I got off that plan and purchased my own health insurance (with the same insurer)! That change was enough to cause chaos. 

The insurer is denying me the drug until they get more data from my doctor. That should be easy enough no? NO! My doctor's office has been faxing an appeal letter on my behalf to the insurer, on a weekly basis since March! After each submission, the doctor's office calls the insurer, only to find out that the fax was never received. I have been dealing with this fiasco for two months. At this point, I am ready to blow. Today I decided after being told once again to fax the appeal, I made a formal complaint to my health insurer, both in writing and over the phone. How on earth can you tell a patient and doctor to submit documentation by fax, if the fax system is clearly not effectively working? Literally no one will answer this question, nor will anyone reach out directly to my doctor's office to process the appeal. 

If this health insurer thinks I am going to back down, or let this issue drop, then they have no idea who they are dealing with, as the one thing I possess is PERSISTENCE. 

I am pushing myself this week to pack up Foundation raffle items and get them mailed out or hand delivered tomorrow. I also sent our all gift cards to our top walkers and they were received today. So I am on a roll. I will still have more admin to do for the walk, but it will be more manageable and I can juggle it. 










This is our Walk thermometer today.... we have reached $44,000, of our $50,000 goal. Given the two years that I have been having, it is remarkable that I was able to pull this off. I am grateful to friends and supporters who donated and continue to stand behind the Foundation, which ultimately serves as Mattie's legacy!


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