Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 13, 2013

Sunday, January 13, 2013

Sunday, January 13, 2013


Tonight's picture was taken in May of 2006. It was memorial day weekend and we took Mattie to Sesame Street Place in Pennsylvania. On our way up to Pennsylvania we stopped at a fantastic aquarium in New Jersey. You can see Philadelphia across the river and to me this made a beautiful backdrop for a photo. It was an exciting weekend for Mattie and therefore for us.


Quote of the day: I take care of my flowers and my cats. And enjoy food. And that's living. ~ Ursula Andress

Weekends for Peter and I are quite different now without Mattie's presence in our lives. When Mattie was alive, Peter would get up early on the weekends to do all sorts of activities with Mattie. It was their "boy" time. They would do all sorts of things that varied from taking a row boat on the Potomac River, to fishing, or buying materials at Home Depot and building something. They were always up to something. On some level I knew this, which is why weekends are particularly challenging for Peter. However, last night as we went out to dinner with another couple who also lost their only child to cancer, I got to hear similar comments from this dad about weekends. What he was saying was exactly what Peter had been referring to these past three years. Some how hearing it in unison made an even bigger impression on me. How I grieve and how Peter grieve is different. We concluded this early on after Mattie's death, and we accepted it, rather than getting angry and frustrated with each other. Peter works full time and being in an environment where he has to pretend that it is business as usual is beyond difficult. I can try to relate, but I don't walk in his shoes. Last night, sharing similar viewpoints, stressors, and grieving reactions with a fellow dad, I believe was very helpful for Peter. It was helpful for me to hear it as well. Sometimes talking about Mattie between Peter and I isn't easy. It can quickly bring us both down, and when we get into a funk it is hard to pull out of it. Yet despite talking about sensitive thoughts and feelings last night, it was helpful knowing we weren't alone in our experiences and reactions.

Peter and I live very different lives by day. I am not implying that one is better or easier than the other, they are just different! Peter works outside our home, has great responsibilities, and contributes to a company which has measurable outcomes. Whereas, I work from home. I have no staff and if something is going to get done, I have to do it myself. At various points throughout the year, I live and breathe Mattie Miracle, and I know that if I stop working, the Foundation's activities and productivity will cease. That provides a certain amount of pressure because in my mind the Foundation is equal to Mattie. That may sound silly, but to those of us who run Foundation's in memory of our children, these Foundations become vehicles to channel our energy from the grief over our child's death, to creating a legacy in our child's name. As we joked last night, the things the four of us have seen and experienced would be enough to kill the average person. We are not sure how we make it day to day, the verdict is still out on this.

I would like to end tonight's posting with a wonderful article my friend Charlie sent me. As counselors, both Charlie and I loved this simple and yet very meaningful acronym ("LOVE") to help guide effective communication. A solid, meaningful, and long lasting relationship with a loved one or friend can only be achieved with good communication! This art form is hard, and in our busy world, it is rarely done effectively which is why there can be great misunderstandings between people. Some misunderstandings can lead to the severing of a relationship. In some ways the "obstacles to listening" are just as important as the four steps to great listening. No matter how good a listener we all are, there is always room for improvement and I have learned that when you listen, validate what someone else is saying, and also empathize with someone else by stepping into their world to try to understand the reasoning for what is being stated, that the connection between two people deepens.

4 Steps to Great Listening

The secret to amazing relationships by Benjamin Rapaport

 
We all want amazing relationships. Every week a bestseller comes out with the latest recipe for how to have them. Let’s consider the faculty of hearing. Every word that is spoken is heard one by one. It is only in the mind of the listener that the words come together and combine into a meaningful whole. This physical reality reflects a spiritual truth: It is through really listening that discrete, separate entities come together and form a greater whole. How we hear determines the quality of our relationships. To experience deep connection we need to develop our listening abilities. Here are four fantastic tips to help us hear better and take our relationships to new levels:
 
1) Listen with your eyes. Look at the other person when they are speaking. 93% of our communication lies beyond the actual words that are said, according to a study by UCLA. 38% is related to voice quality, things like tone and inflection, and 55% is related to non-verbal communication, the physiology we talk with. This means that the way we physically communicate is nearly eight times more impactful than the actual words that are said (at 7%). We’ve all had the experience of talking with someone and they are looking past us or checking their phone. We may have also experienced how wonderful it feels when the person we are with is really listening to us, and really sees us. Next time someone is speaking to us, let us tell them with our eyes that what they have to say matters to us, and even more importantly, that they matter to us.
 
2) Ask open questions. An open question is the type of question that invites the other person to tell their story, to respond with something more than just a yes or a no. These questions often begin with words like “what” or “how” and create a space for an answer that will take longer to listen to. They communicate: I am interested in knowing you more deeply, in connecting with you. Closed questions such as, “Did you like it?” Or, “Was your meeting good?” limit the feedback. They close us in to a short response. Often this all the questioner wants and we respond in kind. When we give others the room necessary to share their story it encourages them to go further with us, to experience a more profound connection in the relationship. It is remarkable how powerful this can be in building better rapport.
 
3) Validate: Even when we disagree with something that has been said, we can express this in a way that is respectful of the other person and their intelligence. Expressing our criticism in a way that validates the value of the other person makes all the difference.
 
4) Empathic listening. Try to get behind the eyeballs of the other and strive to understand what they are thinking and feeling. Ask yourself, what brought them to their position? Who is this person? Where are they from? What have they experienced in life? So often, we think we know what others mean without really having the big picture. So many misunderstandings can be avoided when we sincerely reflect on where others are coming from and consider more fully their point of view.
 
An easy way to remember these four tips is to listen with LOVE:
 
L – Look (at the person you are speaking with)
O – Open (ask open questions)
V – Validate (the person you are speaking with)
E – Empathic (try to see from their eyes)
 
Four Obstacles to Listening
In order to really raise the bar in our relationships, we also need to understand the four foes of listening and how to overcome them. They are:
  1. Too busy to listen. Life is busier than ever and we are multitasking like never before. There are emails to answer, meetings to make, and deadlines to reach. As a result, anything that does not seem so urgent takes a backseat. Sadly, listening in a meaningful way to the people in our lives usually falls into that category. The problem with this pattern is that not listening usually translates into not understanding. Over time this ends up costing far more at work and at home, in terms of both time and often money, than if we had invested the time up front in better listening. So, be a smart investor and invest in better listening up front. The dividends will surpass your expectations.
  2. Jumping to conclusions. It is natural to jump to conclusions about what others mean or want without really understanding. This can often send us, with the best of intentions, in the wrong direction. As a general rule, it is helpful to ask for clarification whenever there is room for confusion. This small step can take us far in improving our interpersonal effectiveness.
  3. Not aware. We often undervalue the difference that we are capable of making with good listening. When we consider our own experience of what it feels like to be heard and seen, or not heard and seen, we can appreciate how meaningful our hearing and seeing can be to others. This awareness awakens us to uplift others with the way we are present as they speak.
  4. Rehearsing our lines. How often have we rehearsed in our minds what we were going to say next as the other person was speaking? Maimonides taught that it is impossible to hold two thoughts in our mind simultaneously. As a result, when we are rehearsing our lines we are going to miss partly or completely what the other person is saying. The realization that our response will be far more to the point when we understand what has been said, helps us to tune in better. A notable benefit of doing this is that others are much more interested in what we have to say, once they feel that they have been heard.
Great listening lies at the heart of connection. When we hear more fully, with our eyes, ears, and words, this communicates how much we care and opens a channel for deep bonding to occur. Make a commitment to listen with LOVE and enjoy better relationships today.

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