Tonight's picture was taken in September of 2008. Mattie was in his first month of treatment at the hospital and by that time had made himself a very frequent visitor to the art table in clinic. Mattie had two amazing art therapists who understood that art had to come from within and NOT be directed by the therapist. You would actually be amazed by the information we learned from Mattie when he was doing art. As can happen so often, feelings and thoughts get transferred to the art. I literally saw art therapy in motion with Mattie. So many of Mattie's art projects are now sitting in our home. At the time we had no idea that these would be his legacy items.
Quote of the day: Either you run the day, or the day runs you. ~ Jim Rohn
Certainly I know that families want better treatments and I support this notion. But what I do not support is talking about the physical care in isolation of the psychosocial issues. Yet at this caucus there will always have survivors testifying. But guess what? They aren't talking about their experiences, memories, or feelings about the medical treatment! What they are discussing are the long lasting psychosocial impact of the treatment and late effects. As I always say..... the psychosocial issues don't end when the treatment does! I live in hope that ONE DAY the caucus will talk about true comprehensive cancer care. It isn't like Mattie Miracle is silent on this issue. We bring it up EVERY YEAR to the planners of this event. Yet as you can see we have much more work to do!
No comments:
Post a Comment