Tonight's picture was taken on September 29, 2007. That weekend we took Mattie to the Swedish embassy, as they were having an open house with all sorts of kid activities. In front of the embassy, they placed this HUGE chair. Mattie climbed on top of it and I snapped this photo! Almost every day, Sunny and I walk passed this embassy. When we do, I always look up to their terraced area and remember this exact moment in time.
Quote of the day: Every man's life ends the same way. It is only the details of how he lived and how he died that distinguish one man from another. ~ Ernest Hemingway
I received an email from a fellow cancer advocate today. She runs her own childhood cancer non-profit. We had the opportunity to meet her on Sunday at Curefest on the National Mall. She was intrigued by our Psychosocial Standards of Care, wants to learn more as well as share them with her Foundation's readers. Which is absolutely fantastic, because we need the advocacy community to be passionate about the Standards and to bring them back to their treatment sites, encouraging their adoption.
At Curefest, we have a brochure available for advocates to introduce them to the Standards and why they are important. Though we highlight the Standards on our Foundation's website, we did not have this brochure available on line. Well that is until today! I am so glad she brought this to my attention, because in 2020, we will be in the position of designing materials that will help advocates understand the Standards as well as provide them with a call to action as to what they can do to help with the implementation process.
While working on our website today, I came across this video we posted back in 2015. It is three minutes long and features one of our core research team members, Dr. Andrea Patenaude (Dana-Farber Cancer Institute). We attended this world conference with Andrea, and while there she was interviewed. The association shared this video with us and I am so glad we have it on the record. Andrea was an intelligent, sensitive, and compassion professional and woman. It is hard to believe she is no longer with us, as she died from cancer in January of 2018. We miss her greatly. She will always be listed as a legacy member of our core team!
https://vimeo.com/135103105
Mattie Miracle's website and the Standards of Care:
https://www.mattiemiracle.com/standards
The Standards Brochure:
https://docs.wixstatic.com/ugd/27074d_6586dbd3a20a4080a05cba3a3a442ac4.pdf
No comments:
Post a Comment