Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 24, 2009

Saturday, January 24, 2009

Saturday, January 24, 2009

Quote of the day: "No one can sincerely try to help another without helping himself." ~ Charles Dudley Warner



Charlie wrote this to me today, "This quote touches upon the subject of gifts that we've been blogging about. Again and again you see how sometimes it is the smallest gift that means the most (fresh cheese, vanilla donuts, handmade cards from classmates of Mattie's, therapists who keep trying, etc). There is also the sense of well being and connection that happens when you find the right gift, the right words that are just what was needed, almost like finding that missing piece to the puzzle you've been working so hard to put together. It was a joy to see it come together for Mattie and see him back up and about with the walker, to see him make that connection from the support of a wheelchair to the support of the walker and then to give the gift of trust in return and give it a try. The best gifts are two ways and reinforce the connection between the giver and the receiver to lift them both to a new level. There is so much of that evident daily in your lives; thanks for sharing it, it is a gift to the rest of us."

Today was what I would call an amazing day. Why was it amazing? It was amazing, because I had the opportunity to witness true friendship, advocacy, and compassion. Though in many ways these are very adult concepts, I experienced them from the children I was surrounded by! A lot of what I witnessed today, was what I would call true beauty. Some find beauty in art, music, food, etc. I certainly appreciate all these things GREATLY! But when I can see true human connections, it makes my heart skip a beat. This indeed happened today.

I spent Friday night sleeping in Mattie's room as he was hooked up to an IV and I gave Peter a break since I think he was in worse shape than me. Mattie slept well and only woke two times during the night to use the bathroom. Although my sleep was disturbed, I was able to get back to sleep fairly easily. Although we were in bed after midnight, we all woke up late around 9:45am, which was a real treat. After I made breakfast for the three of us, Peter and I got ready for the day as Mattie had a very busy social calendar planned. Both Peter and I were able to get a lot of the "small" things done this morning while racing around. Mattie did very well entertaining himself, which seemed like a first, as he poured himself into building another version of the Creator Lego house set.

Mattie was invited to two birthday parties today, one for Charlotte, and the other party was for Nikki. We left the house around 12:30 to head to Charlotte's pool party. Mattie and I debated back and forth about what apparatus to take, the wheelchair or the walker. I was pushing hard for the walker! The less Mattie can rely on the wheelchair, the better, because it will encourage him to walk and use his leg. But he really wanted his wheelchair. Because I wanted this day to go well for him, I respected his decision. When we arrived at Charlotte's party, most of the kids were in the pool. Mattie was greeted by Ellen (Charlotte's mom), Ann, and Christine. That helped with the transition. This gave Peter a chance to slip away and run to Radio Shack to get the wiring needed to set up the lights that accompany Mattie's train set as well as make an unplanned stop at Target to purchase some Legos since our supply was running dangerously low. Not a good thing with Mattie stuck in the hospital for the next two weeks.

Mattie was excited to head down to the pool area and watch and interact with his friends from the pool deck. Many of Mattie's kindergarten classmates greeted him and tried to play around with him. Mattie was throwing pool toys in the pool, for the kids to dive for. Ann was also engaging Mattie and water was flying everywhere. Mattie loved getting wet and he truly looked like he was enjoying himself. During this portion of the party, I had an opportunity to talk to another SSSAS mom, Jackie, who has been supporting us with meals throughout this ordeal. But I have never met Jackie in person before. It was very special to chat with her, to hear her reaction to Mattie's situation and our blog. I of course got to reconnect with my friend Christine, which was special. Christine and I share a lot in common, and I still miss our playground times together.

Ellen worked very hard to make sure Mattie was involved and had a good time at the party. Charlotte (the birthday girl) wanted to sit next to Mattie at the birthday table, and Abigail (Ann's daughter) also wanted to sit next to Mattie. So Mattie was surrounded by his friends, who tried very hard to include him and meet his needs. After swimming, the kids played a lot of fun party games. I snapped some lovely pictures from Charlotte's party. I think the pictures show how happy Mattie was at the party! Look at that smile at the table! Mattie enjoyed the circle game the kids played. You can see Mattie talking with Abigail and Campbell in the circle as they are working on unwrapping the gift that was going around like a hot potato.



















Left: Mattie, watching Charlotte blowing out her candles!



Right: Mattie and Charlotte!


















Abigail, Mattie, and Charlotte! I am not sure who is cuter here!!!



After Charlotte's party, we headed off to Nikki's birthday party. Nikki was outside eagerly awaiting Mattie's arrival which was very sweet. Peter carried Mattie into the house and after a brief stay downstairs the party headed upstairs for the Pop Rock Star themed activities. There was costuming, make-up (Mattie passed on that), dance routines that Mattie participated in (thanks to Peter holding and helping to move Mattie), singing, a scavanger hunt, and a walk-down the runway ending with an individual pose and picture. It was a riot! The kids then headed downstairs for cake and punch. All in all, Mattie did extremely well given that he knew he couldn't do most of the jumping around, but it didn't really seem to bother him. Several of the girls, including Claire F. (Claire and Mattie were in the same kindergarten classroom last year) and in particular, Abigail stayed glued to Mattie throughout the entire party, lobbying for Mattie and alerting Peter when Mattie needed something. Abigail rarely left Mattie's side and sat out several of the activities just to sit by Mattie's side. I left Nikki's party early because I planned a meeting with a colleague who was visiting from out of town. But I witnessed enough to be thoroughly impressed with Abigail and Claire. Abigail told me that Ann (her mom) told her to stay with Mattie at the party. But we all know we can tell our children to do something, but it isn't always executed. Abigail many times during both parties today advocated for Mattie. Another child was asking why Mattie was so slow and before he could continue on with his commentary, Abigail set him straight. I am not sure you can teach this level of advocacy and empathy to a child. Though Abigail's compassion and sensitivity shouldn't be that surprising to me. She has an excellent role model, her mom, Ann. Abigail is the seven year old version of Ann. Talk about social learning theory in action, where what a parent models gets translated down into a child's behavior. Wow! Seeing how Mattie's friends embraced him today and were patient and inclusive made this day AMAZING! Again I see we adults have a lot to learn from children. We captured some of the highlights of the party.




Mattie --- dressed as a pop star! He was happy he did not have to wear a pink dress!



Mattie and Abigail smiled for the camera!













The girls dancing and singing! Mattie held his own considering he was the only boy at the party (other than Nikki's brother). Mattie felt special to be included.




The whole cast from the party!
After the party, Mattie and Peter headed home where they promptly started listening to 80's rock (they do this sometimes). While listening to music Mattie was Lego-ing and managing Peter's tasks and time to ensure he got the train lamps wired up properly. Hopefully we can take a picture of the finished product tomorrow! As Mattie and Peter were building at home, I went out to dinner with my colleague in Old Town, Alexandria. It was lovely to get out, see other people, and eat a dinner in peace. It is amazing to see people living their lives and enjoying a normal life, and the irony is they may not even know how lucky they are!
We want to thank Eva Katcher for a wonderful dinner tonight. I loved the chocolate mouse and Peter really enjoyed your salmon. As I am sign off for the evening, Mattie and Peter are watching the Bee Movie. Though this movie got panned by the critics, I just love it! Mattie is headed to have another fun day tomorrow, since we are taking him to see the movie "Hotel for Dogs" with a friend! It was a great saturday, filled with fun, smiles, and the opportunity to witness the power of friendship.

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