A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



March 6, 2014

Thursday, March 6, 2014

Thursday, March 6, 2014

Tonight's picture was taken in March of 2007. Mattie went on a trip to Key West with us and Peter's parents. Mattie had a great time exploring the Keys and as you can see here Mattie paused by this dinosaur comprised of found pieces of metal. Mattie got a kick out of this creation and was trying to do his impression of a dinosaur! A cute moment captured in time, but a moment I remember so well. 


Quote of the day: True friendship is seen through the heart, not through the eyes. ~ Friedrich Nietzsche


Peter is back in Washington, DC tonight. But after hearing about his flight, all I can say is I am so happy I wasn't on it, as I am sure Peter was too. Peter had two hours of severe turbulence. In which the plane did free falls of several hundred feet throughout the flight. Peter tells me the woman next to him was sighing and moaning and popped two Xanex, for anxiety. I feel for this woman totally and while Peter was telling me the story tonight, I could feel my level of discomfort. Thank goodness I did not know he was dealing with this, because I would have been very worried. Peter loves motion and roller coasters, but he said even this flight bothered him. So I deemed that as ONE BAD FLIGHT!!!

I started my day with a conference call. Mattie Miracle has been asked to submit an abstract to present at a conference in Toronto, Canada in October. The conference itself is international and draws doctors, nurses, and parent advocates from around the globe. One of the conference organizers has learned about our National standard of care that we are developing and feels this is something the international community would be interested in hearing about and potentially adopting. All music to our ears. So I find in addition to my other roles and duties for Mattie Miracle, I now need to add conference presentations and abstract writing to my list. This is a great problem to have, but slowly I am seeing there aren't enough hours in the day. 

When I wonder why I have such intense headaches now, all I have to do is pause and assess what I need to do in a given day or week. I have to admit it is overwhelming, but I deem this as the stresses that any small business owner faces. Though I run a non-profit, at the end of the day, it is just like running a business and has some of the same complexities, demands, and challenges. 

Later today, I had the opportunity to visit with my 85 year old friend Mary. Nietzsche's quote intrigues me because with Mary, our friendship is not only felt through the heart, but it is also felt through our eyes. In some ways, caring for Mary reminds me of caring for Mattie. In the sense that both tracked me with their eyes and really words did not need to be said. So much is said through one's eyes and despite my friend's failing health, there is some sort of comfort knowing that even without words, we can still connect. 


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