Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

August 29, 2019

Thursday, August 29, 2019

Thursday, August 29, 2019

Tonight's picture was taken in August of 2005. Mattie was visiting my parent's in Los Angeles. We took him to Griffith Park and he got to ride on a pony. Despite being strapped onto the horse, Peter went and walked along side Mattie to be safe. Rather ironic, as we thought about all the possible ways Mattie could get hurt or sick, but in our wildest imagination, childhood cancer never crossed our minds. 


Quote of the day: One in every 3 people in the US will get shingles in their lifetime. No matter how healthy you feel, your immune system declines as you age, and that puts you at an increased risk for shingles. ~ Shingrix.com


Today I had the pleasure (and I am using that term lightly) of going to see one of my medical specialists. She doesn't know me very well as I typically only see her once a year. She doesn't have much of a personality usually, and comes off as more of a researcher scientist than a bedside physician. Today it was like she had taken her happy pills, as she was all chatty and interactive. I honestly wanted to say..... 'what happened to you?!' Given she was chatty, I wanted to reward this quality, so I listened and politely responded. However, I did not want to really hear the content she was talking about! She was going on non-stop about her children, the end of summer, the kids going back to school, children learning to drive and the list went on! I learned more about her from this one visit than I have in three years! 

In her conversation, she was telling me that today was her son's half birthday. He turned 14 1/2. She said her son can't wait to turn 15 and 16, so he can drive. She told me that she said to her son 'of course you will turn 16 and be driving soon enough.' To me the response caught my attention, because this medical doctor made the assumption that children grow up and that nothing would really prevent this from happening year to year. Naturally childhood cancer is no where on her radar scope..... thankfully! But as I was listening, all I could think of is turning 16 isn't guaranteed for her son or any of our children. 


After that fun, I spent several hours on the phone calling all over the DC area to find the Shingrix vaccination for the shingles. Both my doctor and Peter's doctor recommended that we get this shot this year. Given that two of my close friends contracted shingles this year and it took months to recover, I decided to be proactive. As I don't want shingles and find it scary that 1 in 3 people get the shingles. Notice in the Penn Medicine advertisement it says that your risk is higher for shingles if you are under a great deal of stress. That was all I had to hear, as I find for Peter and me, life without Mattie is stressful on a good day. 


Shingles is an itchy and painful skin rash caused by reactivation of the varicella zoster virus (the same virus that causes chickenpox). SHINGRIX uses your body’s own immune cells to boost your immune system’s defenses against shingles. It is the only shingles vaccine proven to be greater than 90% effective in clinical trials. If you’re one of the 99% of adults over 50 years old who have had chickenpox, the virus that causes shingles is inside your body and can reactivate at any time. 

This photo shares some facts about shingles. After calling several CVS stores, I found one in Arlington, VA that had the vaccine available. Peter and I went today and we spoke with the pharmacist, who gave both of us the shot. Naturally before getting the shot, I asked lots of questions. As I wanted to know about side effects, effectiveness, and whether we would ever need another shingles vaccination in our lifetime. 

I have to admit getting the shot hurts, as it is inter-muscular (like tetanus), but so far I don't have a fever, stomach or arm pain. So I hope that is a trend. In 2-6 months, we will need a booster shot and then hopefully we will be done. However, when the pharmacist saw Peter and me, he was confused as to why we needed this vaccine, as he deemed us to look younger than the onset age one typically gets the shot. He scored major points with me!

No comments: