Tonight's picture was taken on July 27, 2008. Only four days after Mattie's cancer diagnosis. I can still remember the feelings we had during that moment in time. It was before the news really sunk in and a plan was developed. Back then it felt like a switch turned on inside of us and we couldn't sleep, eat, or truly sit still. A total level of agitation, anxiety, and fear rolled into one. Yet we tried the best we could to keep Mattie engaged and doing the things he liked. Such as sandbox time on our deck!
Quote of the day: Today's coronavirus update from Johns Hopkins.
- number of people diagnosed with the virus: 4,309,230
- number of people who died from the virus: 148,298
This toolkit is necessary, because the Standards themselves are voluminous and though scientifically rigorous in their creation, it has been difficult for clinicians to implement them without evidence based guidance. This is where the toolkit comes in. Mattie Miracle has provided on going support for this work and we also paid for the toolkit's publication (specifically providing the public open access to the publication indefinitely).
I welcome you to check out the publication and don't forget to look at the supporting information link at the bottom of the article to access the Matrix and Guidelines.
https://www.onlinelibrary.wiley.com/doi/10.1002/pbc.28586
The Matrix, is an assessment tool treatment sites can use to score how well their program meets each of the 15 psychosocial standards of care. The score is provided on a five point Likert scale. The higher a score on the Matrix, the more comprehensive a program is at meeting a Standard of Care. 
- treatment programs will have an easier time assessing whether their psychosocial services are in line with the Standards of Care,
- the Matrix and Guidelines will help clinicians' improve the quality of psychosocial care provided to children and families, and
- ultimately these tools will enable quality Standards of Care implementation research.
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