Mattie Miracle 2021 Walk was a $125,000 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

August 25, 2020

Tuesday, August 25, 2020

Tuesday, August 25, 2020 -- Mattie died 569 weeks ago today. 

Tonight's picture was taken on August 6, 2009. In a way, it was a companion photo to the one I posted last night. Last night, I posted a photo of Mattie sitting around the art table with his friend Jocelyn and her sisters. But we weren't in the photo! Where were we? We were in a separate room talking to Mattie's doctor. She shared with us Mattie's terminal diagnosis and how there was NOTHING more we medically could do for him. It was a very hard meeting, to say the least. When we came out of the meeting, you can see Mattie was studying us! He wanted to know where we were and what we were doing. Honestly you could make a comic strip out of this snapshot in time. However, there would be nothing funny about any of the captions. Kneeling in front of Mattie was Kathleen. Kathleen was an inpatient nurse of Mattie's, who he was close to. Kathleen literally came off the inpatient unit, to visit with Mattie in the outpatient clinic because the team understood the magnitude of the day for us. 


Quote of the day: Tonight's coronavirus update from Johns Hopkins

  • number of people diagnosed with the virus: 5,773,220
  • number of people who died from the virus: 178,347

This is the front of my parent's home. Keep in mind that I was NOT snapping this photo from the street. Instead it is a 500 foot walk from their front door (by the roses) to the street. It is the endless driveway. Once you walk to the end of their driveway, we then have to walk down our neighbor's driveway, since the house is on a flag lot. At the end of our neighbor's driveway is a gate to the street. It is a common gate that we share with the neighbor. So understand that we can press a button to open the gate from inside the house, but so can our neighbor. Sometimes we do it at the same time, not on purpose of course, but we are both trying to access the gate to allow visitors out. When this happens, chaos unfolds. Because she presses the gate open from her house, and I press it open from my parent's house at the same time. You may think that this would be more rare occurrence, but it has already happened to me twice this week. 

The neighbor presses the button to open the gate, while I am simultaneously pressing the button for the gate to open. But instead it triggers the gate to close. Since we have NO video camera on the driveway, I have no idea what is happening out there! I had it with this gate, especially when my dad's caregivers were going down the 500 foot driveway.... I pressed the button to let them out, but instead, they were trapped by the gate and I had to walk out to resolve the issue! Not practical on a good day, but really stressful when caring for someone inside the house. 

I am going to walk you down the 500 foot driveway. So basically I was taking this photo from the front door of the house.  I walk on the path to the driveway. But check out the length of this driveway!
This part is my parent's driveway. 
That driveway, leads to our neighbor's driveway. Which we need to walk down to get to the gate. I am telling you it is crazy, balancing this gate. I have no patience for it while also managing all the caregivers who stop by each day. 



Last night, our friend who is an electrician designed this kitchy exit key pass station. Literally visitors can now drive down the drive way. Open their car window, input a security code and the gate opens. Now visitors are in control! THANK GOD! 

Our neighbor on the flag lot knew we were going to work on this system and she agreed to it (as it benefits her and her visitors too). However, when she saw the plastic flowers the electrician's wife put on this pole, she called me. She requested that I remove all the flowers as she felt it did not fit with her landscaping. I worked about a 14 hour day yesterday, and having to go back out and cut wires to dismantle the flowers wasn't top on my list. But I did it. Needless to say our caregivers used this exit system today and it worked like a charm!
The electrician's wife is a baker. She knows I love her gingerbread cookies. So she baked me two boxes full. They perk up my day! Mattie would have loved this as he was really the one who introduced me to gingerbread. He loved it. 
Meanwhile, Sunny is keeping Peter busy! Peter was in the kitchen cooking Sunny ground meat, and Sunny was keeping an eye on the process. 


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