Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 24, 2022

Monday, January 24, 2022

Monday, January 24, 2022

Tonight's picture was taken in January of 2009. Mattie loved doing puzzles. Frankly this wasn't on the forefront of my mind until I saw this photo. Then of course it came back to me. Mattie gravitated to puzzles even as a toddler. He was fascinated by how things worked, went together, and matched.



Quote of the day: Today's coronavirus update from Johns Hopkins

  • Number of people diagnosed with the virus: 71,437,265
  • Number of people who died from the virus: 868,027


My dad's occupational therapist came over today. I like Donna a lot and I am saddened she can't work with my dad long-term, thanks to Medicare! In any case, Donna gave my dad today a cognitive test, called Trail Making (this is a sample photo). Basically it assess how well one can sequence information. So in this example, he had to take a pen and draw a line from 1 to A. Then 2 to B. So number to letter, letter to number, etc. Up to number 25. 

Donna says that the average person can do this exercise in under two minutes. Those who take over two minutes, clearly have cognitive issues and when being evaluated to determine if one can safely drive a car, if one takes more than two minutes to complete this test, then this would show that one will most definitely have issues driving. My dad did this 1-25 test in five minutes today. My dad hasn't driven in two years, so that isn't an issue, but Donna's test clearly showed cognitive problems. Problems I face daily. 

All of this is rather hysterical to me because when my dad had his physical last week, the doctor, who I nicknamed Dopey Doo, asked him some basic questions to assess his cognitive ability. He asked my dad to name the current president and vice president. My dad had no problem with that. So from the doctor's perspective, my dad looks intact. But if you scratch the surface or even asked me some basic questions, then you would know that my dad likes listening to the news. Therefore, he will most definitely hear over and over again such info as the president and vice president. But moving beyond that, my dad really can't remember anything you told him five minutes ago. He also has large gaps in long term memory as well. To me this doctor doesn't get my dad or even what I am up against. The doctor says he's an optimist and is hoping for my dad to regain strength and move from using a walker to a cane. 

Got to love this doctor! I am a realist and have followed my dad's case since he was hospitalized in 2020! My dad will NEVER go back to using a cane. It's a safety issue and his balance and judgment are no longer good. But this doctor refuses to confer with me. I spoke to my dad's occupational therapist today and she of course agrees with me. It doesn't take a rocket scientist to see the reality! 

The occupational therapist acknowledged me today, as she knows I am doing all the caregiving in the house. She also learned about Mattie and Mattie Miracle, and commended both Peter and me. Not that I need kudos, but my days are long and I appreciated her kindness in telling me that I am doing a great job.

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