Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

October 26, 2024

Saturday, October 26, 2024

Saturday, October 26, 2024

Tonight's picture was taken in October of 2007. Mattie was five years old. It is hard to wrap my head around the fact that nine months after this photo was taken, Mattie was diagnosed with cancer. I was so naive at that moment in time, and I truly wish I still lived in "Disneyland." This is what I refer to as, pre-cancer life. That day we went to  Butler's Orchard, went on a hay wagon ride to the pumpkin fields, and Mattie picked out two beautiful pumpkins. 


Quote of the day: Love is blind, but a broken heart sees everything. ~ Matshona Dhliwayo


My dad's physical therapist came to our house this morning. She is the one ray of light in my very long weekend. She was only here for an hour or so, but we have similar energy, so I feed off of her can do attitude. While my dad was in his session, I worked on finishing the Foundation's October newsletter. Then this afternoon, I took my parents out for a bit. While out, my mom was doing her usual lamenting. She then turned on me and said I needed to get over Peter. That I can't keep loving a person who doesn't love me. Rationally she makes sense, but it is very hard to do when you have been intertwined with someone for so long and the dissolution of our marriage makes zero sense to me. If I saw it coming that would be hard enough, but at least I would be prepared. Not only wasn't I prepared, but I was left in the worst possible manner. 

I was so upset with my mom, that I literally walked away from both of my parents for about five minutes to regroup. I typically don't do that, but it was either that or explode. Since my poor dad rarely knows what is going on, it served no point for me to start screaming. 

When I got home later today, I changed clothes, grabbed the hedge trimmer and went at it in the backyard. I got a tall ladder and dealt with a very large shrub. Then just kept on going. I had a big clean up job but I needed to move, I needed fresh air, and I needed to be away from conversation and noise. 

I am dealing with intense heartache and intense caregiving at the same time. Imagine each day looking a lot like the same day before it. Imagine not having a minute to yourself, not even to recover from a medical procedure or a flu shot. Imagine to not have the freedom to do anything because your day is programmed around caring for other people. This is what my life has looked like for three years now, and that alone can bring down someone's mood and spirit. But as difficult as this is, Peter walking out on me on September 23, 2023, has done indescribable and permanent damage. 

October 25, 2024

Friday, October 25, 2024

Friday, October 25, 2024

Tonight's picture was taken in October of 2007. Mattie was five years old and that weekend we visited Butler's Orchard in Maryland. It was a tradition we started when Mattie was about three and half years old. Mattie loved the wagon ride to the pumpkin patch and then the fun of picking out a pumpkin in the fields! I can't look at a pumpkin now without thinking of Mattie and the fun we had together each Fall. 


Quote of the day: You ask everybody you know: How long does it usually take to get over it? There are many formulas. One year for every year you dated. Two years for every year you dated. It’s just a matter of willpower: The day you decide it’s over, it’s over. You never get over it. ~ Junot Díaz


At 4am, I woke up with intense shivering. It was so severe that I practically couldn't move. I some how was able to get up, open my nightstand and take Advil. If it weren't for Advil, I would never have gotten back to sleep. When I woke up at 6:30am, I felt like I was on fire. I took my temperature and it was 101. Most people who have 101 fever, go back to bed and rest. NOT possible in my household. Since Peter left me, I am the sole adult on duty. It is a large and daunting responsibility. 

At 6:30am, I walked downstairs, fed Indie, popped two Tylenol, and tried to pull it together so I could shower, dress, and manage my full morning routine. My dad had his memory care program today and my mom's physical therapist was coming at 10am. After her therapy session, we drove to Quest so she could have two different blood tests. I had a whole routine today, of alternating between Tylenol and Advil, so literally I was taking something every two hours. That is how I got through my day.

On top of how crummy I feel, I am noticing projects around the house that really have to get done. Not simple or easy ones. Our flagstone patio is completely covered in algae and instead of seeing the beautiful stone, I see it covered in a layer of blackness. I know Peter used to power wash the stone, but I can't figure out how the power washer works. So I have been investigating other options. But whatever option I choose, it will be labor intensive, which I wouldn't mind per se, if I had a minute to myself. All of these tasks, I now manage alone, and I am always asking myself, how could Peter leave me? My therapist said to me this week.... YOU DIDN'T DESERVE THIS! I am not sure anyone deserves this level of cruelty and abandonment from someone they love. All I know is I wouldn't wish it upon anyone. 

October 24, 2024

Thursday, October 24, 2024

Thursday, October 24, 2024

Tonight's picture was taken in October of 2006. Mattie was four a half years old. When I snapped this photo, my thinking at the time was I wanted to capture Mattie's eclectic side! After all, putting clothes on top of pajamas, made no sense to me. But to Mattie this seemed like a good thing to do, so I just followed his lead. I may have been his parent, but I credit Mattie as being my greatest teacher in life. 






Quote of the day: Be confused, it’s where you begin to learn new things. Be broken, it’s where you begin to heal. Be frustrated, it’s where you start to make more authentic decisions. Be sad, because if we are brave enough we can hear our heart’s wisdom through it. Be whatever you are right now. No more hiding. You are worthy. Always. ~  S.C. Lourie


This morning after getting my dad showered, dressed, and had breakfast, I jumped into the car and went grocery shopping. I had to get that task over with because I have no time for this on Friday. When I got back from the store, I quickly put items away, got my dad toileted, and took my parents to CVS. We all had a scheduled flu shot. Since my parents moved in, I get a flu shot annually. If they were not living with me, I would forego the shot, as it typically makes me feel awful. But I can't afford to get the flu now, otherwise my entire household would come to a stand still. 

While at CVS, waiting for the pharmacist, we got to interact with a three year old boy. He was there with his parents, and his mom was getting a vaccine. This little boy was priceless. Friendly, curious, playing with items on the shelves, waved at customers, and even blew kisses. I told his dad that his son was the new CVS ambassador. I naturally relate to little boys, given my experience raising Mattie. When I compare these parents today to the woman without shoes in the parking lot on Tuesday, it makes me pause. None of us have control over who are parents are, but they certainly influence our entire life. 

This evening I went to my weekly therapy session. I told the therapist that I see no point in therapy. I am stuck not understanding why Peter left me and I am decimated by his decision. I even said that I can imagine she is tired of listening to my broken record. She has been trying to get me to take a step forward by at least be willing to accept that there could be life without Peter. Normally I can't even go there! Not that I was able to today, but the one difference is she took a step back and reflected. She reflected on what I have actually accomplished since September 23, 2023, the day Peter left me. She acknowledged that moving from married to almost divorced in a year's time is FAST emotionally. I concur, and not only fast, but I have had no say in the process. Whether I want to get divorced or not, doesn't matter! In the eyes of the law, if Peter wants to get divorced, it happens. 

It takes great planning to execute a marriage, and a stroke of a pen to dissolve it. Any case, the therapist has been trying to get me to channel my connection to Mattie to manage times when I feel great angst. Times when I feel so alone and devastated. In essence, she is talking about focusing on my more spiritual side.  While she was talking, it triggered a text conversation I had just a few days ago with my friend, Cheryl. So I recounted this dialogue to the therapist.

Cheryl and her group of friends were praying for me on Monday, when I was having a colonoscopy. When I told Cheryl the results were fine, we continued our text dialogue. I told her that I feel that God continues to test me. Actually I think God has it out for me, but that is another story. Cheryl could have dismissed the comment or said something trite. But that isn't Cheryl. Instead it was how she responded that caught my attention. Her response was that she wasn't sure God was the one testing me, but more like the one holding me up. I have to tell you I never looked at it that way. It got me to pause and for a moment think..... is God really with me? Is he witnessing my heartache? 

Needless to say, I told the therapist that this week when I face moments of despair, I will try to think of Mattie and will ask God to look out for me. I am not saying this is a magical solution, but perhaps it will give me an outlet that is bigger than myself. I have to say while recanting the story to the therapist about "God holding me up," I was in tears and by the time I finished with therapist, so was she. This signaled to me for once that..... YES she gets my pain and is listening. 

October 23, 2024

Wednesday, October 23, 2024

Wednesday, October 23, 2024

Tonight's picture was taken in October of 2006. Mattie was four and half years old and that day we went to a Fall Festival. We came across this giant pumpkin and we stopped to take a photo together. I remember this day as if it were yesterday! Prior to Mattie coming into my life, I had no feeling one way or the other about pumpkins. I certainly did not eat anything pumpkin. That all changed when Mattie came into my life. He helped me to learn to love the look and taste of this beautiful orange orb. 


Quote of the day: How do you love someone and just… Walk away? Just like that. You just, go on as normal…. You get up, get dressed, go to work… How can you do that? How can you be okay with that? ~ Ranata Suzuki


This was our cul de sac this morning! If Mattie were alive, he would be having a field day with my neighbor's house renovation. As Mattie loved anything with wheels, but construction trucks really fascinated him. I feel like I am living in a perpetual episode of Bob the Builder. I could use Mattie's fascination with trucks and humor right about now!

After dropping my dad off at his memory care center, I returned home. This was what it was like coming down my block! 

I took my mom to the hospital today for her pulmonary function test and examination. My mom is assessed every six months by a pulmonologist because she has two significant lung conditions, MAC [Mycobacterium avium complex (MAC) lung disease is a rare but serious lung infection caused by the MAC bacteria. MAC is a type of nontuberculous mycobacteria that's found in soil, dust, and water.] and bronchiectasis [is a chronic lung disease that causes the airways to widen and become permanently damaged, making it difficult to move air in and out of the lungs].


My mom endured a Pulmonary Function Test today. She absolutely HATES this test. Since she has these lung conditions, breathing in, holding it, and blowing out are very debilitating for her!

This machine looks like a phone booth. It is used to show how well her lungs are working. The test measure lung volume, capacity, rates of flow, and gas exchange. A normal score is 80% or higher. My mom scored a 64%, down from her score of 68% in 2022. 

The tech running the test was so concerned about my mom, that he gave her an albuterol treatment on the spot. He then questioned me as to why I wasn't having her use her inhalers daily! I told him he was mistaken, that she isn't on inhalers. But he kept pressing me. He made me so uneasy that I literally started questioning myself. I am juggling so much, that it is possible I could screw up! That feeling came and went, and then I gave it to him! NO my mom was NOT prescribed inhalers, and though it is in her chart, she only was given an inhaler in 2022, when she was ill. We disagreed back and forth, but when I confronted the doctor. Guess who was right? Correct, me! I have now gotten him to remove this from her medical record so that I do not have such an episode in the future. 

My mom was concerned about her test score! So I gave her a reality check. I asked her if she felt physically bad? She said, "no." I asked her does she have trouble catching her breath when walking? She said, "no." Then I said to her, "as long as your quality of life isn't affected, then you need to forget about this test score. Let the doctor worry about it, not you!"

October 22, 2024

Tuesday, October 22, 2024

Tuesday, October 22, 2024 -- Mattie died 785 weeks ago today. 

Tonight's picture was taken in October of 2006. Mattie was four and half years old. This was a rare sight in our home! Mattie lying down! This only happened at night when it was time to go to bed or when Mattie was ill. Otherwise, Mattie was ON from the moment he woke up in the morning. I attribute this to Mattie understanding on some level that he did not have a lot of time on this earth, so he did not want to waste a minute of it sleeping. 


Quote of the day: One day you’re going to remember me and how much I loved you… then you’re gonna hate yourself for letting me go. ~ Aubrey Drake Graham


Today I experienced many intense feelings. NONE of them had to do with Peter. I saw sides of humanity today that made me mad and deeply sad. I was driving my parents to our local diner. I have been home for the last few days dealing with non-stop colonoscopy prep, cooking, and cleaning. Today, after my mom's therapy appointment and after I finished my 7 hour dialectic behavioral therapy course (YAY!!!), I decided to take my parents out. It was 84 degrees in October, if only it could be this way 365 days a year. 

As I was driving out of our community to the diner, I noticed a woman driving out of her driveway. That wasn't what caught my attention. What caught my attention was a little tan dog running in circles around her moving car. Seriously the dog was the size of a cat! Tiny and running in circles around a moving car! The woman did not STOP, she kept on driving, and literally drove out of her driveway into the busy street. Guess what? The dog also kept going! He did not stop at the curb. Instead, the dog flew out into the street, chasing her car. When he realized she wasn't coming back, he sat in the middle of the street and then started darting back and forth in the street. This particular street is BUSY! I was LIVID at what I was seeing. I could see cars coming head on, who did not see the dog. I stopped my car and pushed down on my horn and wouldn't stop with the horn until I got every driver's attention. They then saw what I was seeing and honking about. I pulled my car over, got out, and assessed the dog. The dog came up to me, tail wagging. So friendly! I literally picked this cutie up and had it in my arms like a baby. I crossed the busy street and decided to walk up the driveway to see if someone else was home for this dog. Meanwhile this dog was licking my face and absolutely a loving and gentle pooch. A pooch who deserves a better and more responsible owner. 

As I was walking up the driveway, a man came from the backyard. He was on his cell phone and talking. I didn't care! I started talking to him, even though he was on the phone. I asked him if this was his dog. He said yes, and he told me that the dog loves chasing after his wife's car! I said it is bad enough that this little dog is chasing after a moving car in the driveway, but when the dog proceeds to the street, where cars are all around, then this becomes very unsafe for the dog and for drivers. The owner did not care! He did not stop talking on his cell phone, he did not thank me for saving his dog, and he literally grabbed the dog out of my arms by the scruff of the dog's neck. It took every ounce of energy not to smack this man. He is lucky to have a healthy and loving dog and he treats it poorly. 

When we got to the diner, I parked the car close to the entrance. I helped my mom out and then I opened my truck to get my dad's tote bag and walker. When I closed the trunk, I noticed a four year old girl walking around the parking lot by herself with NO shoes on. I told my mom to wait and my dad was still sitting in the car. While walking over to her, I could see a woman a few cars down, sitting on the ground next to a minivan. She had her head down in her knees and she too had no shoes on. But she did have a cell phone. I walked up to the four year old, who literally could have gotten hit by a car and she naturally took my hand. I then asked her.... "is your mom around?" She pointed to the distraught woman with her head down in her knees. I told the little girl to take me over to her mom. She did. When I got to where the woman was, she did not seem to care that I was holding her daughter's hand. She did not seem to care that her daughter was walking around the parking lot alone, and basically she did not seem like she could function. 

I then asked the woman if this was her daughter. It was like I broke her out of a trance. With that she focused on me, looked at both of us, and called her daughter over to her and began talking to her in a foreign language. I did not feel comfortable leaving these two in the middle of the parking lot. I asked the mother if she was okay, if I could help her, if I should get help, and she did not respond. I am not sure if she understood me, but she understood me when I asked her if this was her daughter. The whole scene was disheartening. I couldn't tell if they were homeless, refugees, abandoned, if the mom was on drugs, or what. But I knew enough to know that this little girl has a lifetime of heartache in her future. 

When I got into the diner I inquired as to whether they had seen this mom and little girl before. They hadn't, but they were as concerned as I was. A team of staff went out and combed the parking lot looking for these two, because they were going to help me get help for the mom and child. This speaks volumes about the Carnegie Deli. They DID the RIGHT thing, and showed great concern for our fellow human beings. Both mom and child moved on and we couldn't find them. Needless to say, I can't get them out of my mind, and if you are a praying individual, consider saying a prayer for this little girl and mom. 

Now I also have to admit that prior to stepping in and getting involved with this child and mom, I scanned the entire parking lot first. I wasn't sure if this was a scam and perhaps while I went to help, someone was going to hit or attack us. YES this is the state of my mind these days, or perhaps a sign of the times we are living in. Given I am with my parents, and they are fragile, I have to think of their safety first. When I saw NO one around, only people coming and going into the diner, I proceeded quickly over to the child first. 

Naturally I felt good about saving the dog from harm's way. With the little girl, I do not feel like I was as successful. Certainly I saved her from being hit by a car or grabbed by someone else who may not have good intentions, but I could tell these two individuals need help. I will have my eye out for them when we go back to the diner and next time I will call for assistance, because in my opinion they needed an intervention. I now have the Coordinated Services Planning phone number in my address book!

Took a photo of "Jack," our jack-o-lantern in our front island. Last year, when Peter left, I debated what to do. I decided to decorate and continued this trend this year. 
Indie and I outside on the porch today. 
The beauty of the fall is upon us. 


October 21, 2024

Monday, October 21, 2024

Monday, October 21, 2024

Tonight's picture was taken in October of 2006. Mattie was four and a half years old and that day he carved a tiny pumpkin at his preschool. He brought it home and we put a little candle in it and lit it! Mattie proudly displayed it in our living room. As you can see, Mattie naturally gravitated to orange. No surprise that the Foundation's main color is orange. 


Quote of the day: The emotion that can break your heart is sometimes the very one that heals it… ~ Nicholas Sparks


I am a big Nicholas Sparks fan. I think I have read almost every book he has written. Why? You know there is a story behind this! In the summer of 1996, several of my college friends came out to Los Angeles, so we could celebrate my friend, Leslie's engagement. On a side note, Leslie was my freshman college roommate. To this day, we are still connected and I am honored that I was her maid of honor at her wedding. One of my friends who came out to celebrate with us was Audrey. Audrey has since become a librarian. Audrey LOVED books. I on the other hand wasn't into reading books for pleasure. For me reading was always a task I needed to do for my various degrees. So it was more laborious rather then something fun. 

Any case that summer, Audrey was recounting a book she had just read. As she was describing the story, I got sucked in. So I naturally asked her.... what is the name of this book? It was The Notebook by Nicholas Sparks. Here I was a person who did not like reading for pleasure, and yet I purchased this fiction book. The Notebook resonated with me, and the story captured my heart and mind. I wouldn't have guessed that much later in my life I would be caring for someone with Alzheimer's, and the content of the book would strike home! But what I fell in love with was Sparks' character development, his ability to put words to difficult emotions, and to capture the beauty of true love. I always thought that the husband in The Notebook reminded me of Peter. That Peter would be by my side, no matter what, even if I lost my memory. He would be there to be our historian, and to always recount our life together. Yes I live in a Spark's novel, or in a Hallmark movie at times, where I have this magical notion that true love does exist and when you have it, you fight to keep it no matter what. 

Today was a hellish day. I woke up at 5pm, to take a full dosage of Zofran, an anti-nausea drug. I let this kick in for an hour and then at 6am, I fed Indie, and then began the second dose of the colonoscopy prep. The first dosage, last night, took THREE hours for it to produce its intended purpose. I was so worried that it wasn't working, that I almost called the after hours doctor. But I think it was just stress. I was balancing serving dinner to my parents and cleaning up, that somehow my body knew..... YOU HAVE TO WAIT. So the first dosage of Suprep wasn't bad at all, once I actually consumed the poison like substance. Consuming this nightmare is the hardest part of the process for me.

But this morning, after only five minutes of taking a few sips, I was running back and forth to the bathroom for HOURS. How I was able to get most of this second dosage down is beyond me. I gave up with the last finger full of Suprep, because if I consumed anymore, I would have vomited it all up. Now keep in mind that colonoscopy prep is NOT the only thing I had to do. I had to make breakfast for my parents, get my dad up, showered, dressed, downstairs, and to his memory care center. I run a circus show and I am the ring master. 

I am very grateful for my friend Denise. Denise arrived at my house early, so she could take my dad to his memory care program. Then she took me and my mom to the colonoscopy center, and she sat with my mom for two hours. This is good medicine for my mom, because she enjoys talking to Denise, and my mom needs another outlet OTHER THAN ME! Then we all had a lovely lunch together. I was starving!

The nurse who worked with me today was a pip! I overheard her saying that she was going to get a newbie to train on me and to start my IV. I piped up and I said NO! That I was not going to be her guinea pig, because starting IVs in me is as challenging as it is for my dad. I think the nurses were surprised by my attitude, but I was not in the mood to get poked multiple times, as I need an experienced person working on me. In addition, the nurse couldn't find a vein and wanted to go through my hand. Again I said NO! Then she couldn't figure out how to take my blood pressure. She had cuffs going on both arms and even my leg. Truthfully it is no surprise that when she finally got a reading, my blood pressure was high. 

Thankfully the good news is I am fine and do not have to repeat this process for another five years. Since my grandfather died from colon cancer, I get screened more frequently. Of course anyone who thinks it is the doctor performing the surgery or procedure who is the most important person in the room, would be wrong. DON'T forget the anesthesiologist. This doctor is crucial for your medical stability and the safety of the procedure. All I know is one second she was pushing Propofol into my IV and the next second I was out! When I woke up, I was actually very relaxed. Not my usual state when I wake up. When I wake up at home, I am practically jolted awake, dealing with anxiety and sometimes fear that THIS IS MY LIFE! That I face yet another day without Peter. 

I think what is most disheartening about today is I faced it without Peter and he did not even know or care about the fact that I was undergoing this procedure. How does this happen after 35 years of being together? I HAVE NO ANSWERS. 

October 20, 2024

Sunday, October 20, 2024

Sunday, October 20, 2024

Tonight's picture was taken in October of 2006. Mattie was four and a half years old and as you can see, he was posing in front of a field of corn. It was a corn maze to be specific. We went to many fall festivals with Mattie, and all three of us enjoyed the experience. Got to love that smile!



Quote of the day: Get up, dress up, show up, and never give up. ~ Genevieve Rhode


Given that I had to start colonoscopy prep later this afternoon, I decided to prepare dinner for my parents this morning. I assembled it, so that I did not have to do it while trying to consume this torturous drink. 

I made them a mushroom and spinach chicken meatloaf and roasted potatoes. It is now 7pm, the dinner is cooking. 
My parents are used to going out to brunch every Sunday, but there was no way that was going to be possible. So instead, I took them out midday for frozen yogurt. They had yogurt and I brought along lemon ice for myself. 

At 4:30pm, I started this horrific prep. The Suprep solution and the water had been in the refrigerator and then in the freezer (thanks Phyllis!) before I consumed it. Though it was only 16 ounces, I felt like I drank the ocean. It is totally disgusting and by the time I was 3/4 finished with this glass, I thought I was going to vomit. Even on anti-nausea meds. Now I wait for the fun to take place. I finished this hateful drink two hours ago, and so far nothing. 
While waiting for the inevitable, I looked out my bedroom window, and look who showed up.... a beautiful cardinal. A sign from Mattie that he is with me in spirit. That means a great deal to me because I am not sure I will ever get over the fact that Peter chooses not to communicate with me and not to be a part of my life. After 35 years together, it is enough to make me lose my mind.