Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

March 19, 2009

Thursday at 3:30pm - Updates from Pete

Update at 3:30pm on Thursday ---------
Mattie is in Clinic getting MTP to be followed by platelets. Vicki met with Drs. Snyder and Toretsky and here is the news: Mattie's four lung lesions are still present; two of the lesions are unchanged and two appear that they might have increased in size by a millimeter. However, the two lesions that have appeared to have increased are still too small to definitively conclude that they are cancerous metastases (commonly called "mets"). Also, the increase in size from the last set of scans could also be attributed to a measurement error. So in other words, there is no conclusive proof that these are cancerous mets. We are presently taking this as good news since most importantly, there are no new mets in his lungs, and that the possible increase in the size of two of the mets could be explained away through measurement error. Regardless, we are certain that we will want these lesions removed from Mattie's lungs once his chemo ends in mid-May, so Vicki and I are now turning to the hunt for a pulmonary oncology specialist as well as the top-notch surgeon specializing in this type of surgery. Also, given the location of the lesions the surgery will be performed arthroscopically (versus having the crack the rib cage). More to come later.......


Update from 2:00pm on Thursday ---------
As of Thursday at 2:00pm, Mattie has just completed his bone scan and CT Scan. Vicki will update the blog later on the experiences from this morning (as it was anything but straight-forward). Mattie and Vicki are now in clinic and Mattie has been pre-medicated for his MTP. Mattie will also be getting an infusion of Platelets today, so it looks like it's going to be a marathon day for Mattie and Vicki once again. More to come later....

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