Tonight's picture was taken in June of 2004. We took Mattie to Boston to visit Peter's parents. In our adventures there, Peter's parents took Mattie to Horn pond. Mattie was only two years old in this picture, but he loved ducks and Canadian Geese at a very young age. He loved to feed them, observe them, and try to get as close as possible to these feathered friends. I remember many wonderful times feeding ducks and birds with Mattie and I am happy we had these simple and special times, times which I feel could never have been achieved with overprogramming. This was something Peter and I were always opposed to doing to Mattie. I realize as he got older, programming would come with the territory of life, but to me, these young years were about giving Mattie the time to explore his environment, become socialized within it, and become comfortable with his self naturally, NOT on my schedule.
Quote of the day: Insist on yourself. Never imitate. ~ Ralph Waldo Emerson
I received a beautiful email from Mattie's sedation nurse angel, Debbi. In the email, Debbi shared with me the fact that she had a recent dream in which Mattie was in it. She recounted the details for me and she wanted me to know that Mattie seemed happy. Debbi asked me if I have dreams of Mattie often. It is an interesting question, because for the most part, I would say my dreams of Mattie have been infrequent. However, when I went to the beach in May after the Foundation's Walk, I basically dreamt of Mattie EACH night. The dreams were very vivid and actually confusing, because I expected to wake up and find Mattie there. When I returned home after the beach, things returned back to usual, without me remembering my dreams. Well that is, until recently. For the past several nights, I have had dreams in which Mattie is talking to me, is driving in the car with me, and we are making plans. I find it fascinating that Debbi should also have a Mattie dream this week. Messages from Mattie!
I suppose on a subconscious level, my brain is working on over drive, as Peter and I prepare emotionally to serve on a palliative care panel at Georgetown University Hospital this Friday. It is one thing to share my story over the blog, and quite another thing to share it to an audience of hundreds of doctors, nurses, and other hospital personnel. Personnel who work in the same Hospital that Mattie was treated and died in. The last palliative care panel we participated on was at a conference in November of 2011, and it was a very empowering experience for us. It is my hope that Friday is the same. Having a forum to discuss our thoughts, feelings, and insights about the death of Mattie and how it impacts our marriage, our lives, and our future are rare gifts. We are serving on a panel with another couple we met in November, a couple who lost a child in the Neonatal Intensive Care Unit. Though our stories are different, the ultimate feelings of loss, isolation, anger, and frustration about the future are QUITE similar. In fact, when we first met this couple in November, we took to each other like chocolate syrup and milk. We got each other immediately and all of us are vocal about our feelings and how these feelings are not always understood, appreciated, or allowed to be expressed in our everyday lives.
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