Monday, February 8, 2016
Tonight's picture was taken on February 19, 2009. Mattie was quarantined in his room because of the fear that he had a contagious infection called c-diff. Needless to say they tested his blood numerous times and thankfully within a day or so we learned Mattie did not have this bacterial infection. Which was a blessing because it was hard enough to be isolated for a day, but once you have c-diff, you are isolated for three weeks for treatment. Can you imagine being isolated in this postage size room for three weeks?
That day in isolation, Linda (Mattie's child life specialist) and Anna (Mattie's physical therapist) came into the room to do a therapy session with Mattie. Despite the isolation there were rockets going off in our room and as usual it wasn't boring. In the doorway was Brandon, Mattie's best buddy. Brandon was in the hospital with a ruptured appendix and had to have surgery. Though Brandon couldn't come into the room, notice it didn't stop him from interacting with Mattie and being a part of our day!
Quote of the day: The train blows, just when I was forgetting. Forgetting that I am here alone. And I wonder if those cars got held up by its passing, just as I have yours. ~ Kellie Elmore
I went to visit the next doctor in my arsenal today, an orthopedist. I wanted to consult this doctor on the neuropathy (weakness, numbness, and pain from nerve damage) I am having in my leg and arm. I discussed my theory that I feel I got these symptoms after taking a long term anti-inflammatory drug for Costochondritis, which I got after my surgery in November. My internist said such a reaction wasn't possible, but the orthopedist doesn't disagree with me. She says it is possible. But to be honest no one can really explain why I am having these symptoms which is why next week I am headed for an hour long MRI. It is pretty awful to go into an MRI chamber head first for an hour. I know the prospect of such a test used to freak Mattie out, which was why he was always sedated. I totally get that.
I love when the MRI was prescribed to me, the doctor basically said it is just an MRI, no big deal. I actually laughed because I could have given her a lecture over that comment alone. I would think for the average person, taking an MRI for an hour would be daunting. It is a tight space, when your head is involved, they actually put something over your head to keep it in place, and then you have these ridiculous sounds blaring at you and jostling your body. It isn't good, but then on top of that I also have all the memories associated with Mattie and his MRI scans. So in all reality when she says the MRI is no big deal, it is actually quite a big deal indeed.
I am signing off for today because I have been dealing with a non-stop migraine for three weeks now. This happens periodically for me and when it does it is absolutely debilitating. I have no warning as to when this will come on nor when it will dissipate.
Tonight's picture was taken on February 19, 2009. Mattie was quarantined in his room because of the fear that he had a contagious infection called c-diff. Needless to say they tested his blood numerous times and thankfully within a day or so we learned Mattie did not have this bacterial infection. Which was a blessing because it was hard enough to be isolated for a day, but once you have c-diff, you are isolated for three weeks for treatment. Can you imagine being isolated in this postage size room for three weeks?
That day in isolation, Linda (Mattie's child life specialist) and Anna (Mattie's physical therapist) came into the room to do a therapy session with Mattie. Despite the isolation there were rockets going off in our room and as usual it wasn't boring. In the doorway was Brandon, Mattie's best buddy. Brandon was in the hospital with a ruptured appendix and had to have surgery. Though Brandon couldn't come into the room, notice it didn't stop him from interacting with Mattie and being a part of our day!
Quote of the day: The train blows, just when I was forgetting. Forgetting that I am here alone. And I wonder if those cars got held up by its passing, just as I have yours. ~ Kellie Elmore
I went to visit the next doctor in my arsenal today, an orthopedist. I wanted to consult this doctor on the neuropathy (weakness, numbness, and pain from nerve damage) I am having in my leg and arm. I discussed my theory that I feel I got these symptoms after taking a long term anti-inflammatory drug for Costochondritis, which I got after my surgery in November. My internist said such a reaction wasn't possible, but the orthopedist doesn't disagree with me. She says it is possible. But to be honest no one can really explain why I am having these symptoms which is why next week I am headed for an hour long MRI. It is pretty awful to go into an MRI chamber head first for an hour. I know the prospect of such a test used to freak Mattie out, which was why he was always sedated. I totally get that.
I love when the MRI was prescribed to me, the doctor basically said it is just an MRI, no big deal. I actually laughed because I could have given her a lecture over that comment alone. I would think for the average person, taking an MRI for an hour would be daunting. It is a tight space, when your head is involved, they actually put something over your head to keep it in place, and then you have these ridiculous sounds blaring at you and jostling your body. It isn't good, but then on top of that I also have all the memories associated with Mattie and his MRI scans. So in all reality when she says the MRI is no big deal, it is actually quite a big deal indeed.
I am signing off for today because I have been dealing with a non-stop migraine for three weeks now. This happens periodically for me and when it does it is absolutely debilitating. I have no warning as to when this will come on nor when it will dissipate.
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