Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 25, 2018

Thursday, January 25, 2018

Thursday, January 25, 2018

Tonight's picture was taken in November of 2002. Mattie was 7 months old, and though he never crawled 
that did not stop him from trying to learn how to walk when only a couple of months old! 

This was one of Mattie's favorite things to do.... standing on his feet and walking with assistance! That day we received this cute zippered sweatshirt in the mail. It came from my mentor at Union College. He wanted Mattie to have something from his parent's alma mater. We snapped this photo and sent it to my immunology professor (Dr. Twitty Styles), who I still keep in contact with and he is also a Foundation supporter.  


Quote of the day: You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do. ~ Eleanor Roosevelt.


Peter sent me a link to an article entitled, Animal-Assisted Therapy For Childhood Cancer Reduces Stress, Improves Communication. Which is right up my alley. Sometimes I wonder what it would have been like for Mattie to have the support of a dog while in the hospital. When Mattie was in treatment, NO DOGS were allowed into the units. That has since changed. When I look at Sunny's demeanor, which is calm and gentle, I can actually picture him visiting children in the hospital. As long as there are no threats of squirrels around, Sunny is basically very compliant, follows direction, and loves attention and  engaging with people. 

I attached the link to the article below, but basically the article discusses a 7 year old clinical trial that took place at five hospital sites around the country. The researchers followed 106 pediatric patients, aged 3 to 17 years, who were newly diagnosed with cancer and undergoing chemotherapy in an outpatient clinic. Sixty children received regular visits from therapy dogs and 46 children received standard treatment (no dogs).

The article mentioned that the animal-assisted therapy program used a variety of dog breeds, ranging in shape and size. The canines were screened to ensure they were able to perform these duties. I love that it was noted that these dogs typically had a calm demeanor about them.  


Children in the treatment group received 20-minute sessions with a therapy dog about once a week for four months, in addition to their standard care. They found that pediatric patients who received animal-assisted therapy remained stable in regards to their disease-related concerns, whereas the control group showed increases in quality of life concerns. Additionally, parents in the treatment group reported that their children had significant improvements in school functioning.

I find it particularly interesting that the results showed an improvement in communication within families and between parents and medical staff. This actually doesn't surprise me. In this study they had dogs, but when Mattie was undergoing treatment we had Legos. I realize these things don't equate with each other, but the point is, I saw how positive Legos were and helped Mattie communicate and relate to his professional caregivers. When a nurse or doctor entered into Mattie's hospital room, his reaction was typically to shut down and hide under the covers. Or literally ask them to leave! But if someone started talking to him about his Lego creations, this would immediately capture his attention and change his whole feeling about the medical visit. I have to imagine that having the assistance and presence of a dog provides this similar sort of distraction and provides an ability for everyone in the room to bond over something NOT cancer! 

Bond over something NOT cancer! Which is similar to our Foundation's tagline.... It's not just about the medicine! There is something to be said about connecting with patients, not as numbers or a task, but over human concerns, commonalities and fears. I really think when health care professionals allow themselves to be human in their caregiving practices, small miracles can happen! 


Animal-Assisted Therapy For Childhood Cancer Reduces Stress, Improves Communication:

https://www.curetoday.com/articles/animalassisted-therapy-for-childhood-cancer-reduces-stress-improves-communication


No comments: