Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

October 29, 2019

Tuesday, October 29, 2019

Tuesday, October 29, 2019 -- Mattie died 526 weeks ago today.

Tonight's picture was taken several days before Halloween of 2005. Mattie was three years old and at that point he was in preschool. Mattie was so excited about Halloween and together we created his calico cat costume. I still remember going to buy felt material at the crafts store and cutting out these patches and gluing them onto a sweat suit. Sweat suit material was Mattie's fabric of choice for most of his costumes! Unfortunately Mattie never made it to Halloween. He got very ill with sepsis and was hospitalized. We spent Halloween at the hospital. This particular hospital did not have a peds program or a child life professional. Honestly the doctors and nurses did not know how to care effectively for a child much less meet Mattie's psychosocial needs. Mattie was upset being in the hospital, but I assured him he could use the calico cat costume the following year. Which we did!



Quote of the day: If suffering brought wisdom, the dentist's office would be full of luminous ideas. Mason Cooley


The saga of my tooth issue continues. I have been dealing with this tooth since APRIL! As I reported on October 10, I had a root canal. It was very needed and I made the right decision. However, the endodontist who performed the root canal, is not the professional who places in my permanent crown. I had to go back to my own dentist today for this procedure. Like before, I felt just great before my dentist touched my mouth. Today he removed the temporary partial crown and placed on the permanent partial crown. I could tell when the crown was popped onto my tooth that it did not fit well. You know the feeling of putting a round peg in a square hole. Well that is how it feels. It feels like a foreign objective is in my mouth and it feels like the crown is so tight that it is putting pressure on my other teeth. I told him this today, and he felt that this sensation would go away in a few days! Needless to say, I am NOT holding my breath. I am SO SO tired of this tooth issue, which I have been living with for almost 8 months now.

Meanwhile on top of that tomorrow I begin the prep for a colonscopy on Halloween. Given that I have never done this prep before, the fear of the unknown is high. It's not the start of a good week!

No comments: