Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

November 13, 2020

Friday, November 13, 2020

Friday, November 13, 2020

Tonight's picture was taken a few days before Peter's birthday in November of 2008. Though November 13 is Peter's birthday, on November 12, 2008, Mattie underwent a 12 hour limb salvaging surgery. Therefore, Mattie wanted to celebrate Peter's birthday before his surgery. Mattie worked with his art therapists to create this colorful model magic birthday cake! This cake was treasured then as it is treasured now. It sits on the bureau in our bedroom, and it will always remind us of this moment in time. In many ways all the things Mattie created during his time in the hospital became part of his legacy. 


Quote of the day: Today's coronavirus update from Johns Hopkins

  • number of people diagnosed with the virus: 10,693,773
  • number of people who died from the virus: 243,387


Still plugging away with continuing education. Thirty minutes more to go! However, today, the session I was watching showed a TED talk, that I attached below. It is about 14 minutes long, but worth a watch. Especially if you are at all curious about the impact of social media on one's mental health!

Do you know that there is something called Facebook Addiction Disorder? Well there is and it is defined as an addictive behavior caused by an uncontrollable level of accessing and using Facebook, which negatively affects other face-to-face social activities, studies, jobs, interpersonal relationships, and physical health.

Specifically it is categorized by psychological factors such as salience, tolerance, mood modification, relapse, withdrawal, and conflict. Salience is related to the mental state of continuously thinking about Facebook, whereas tolerance is related to the tolerance level of Facebook usage (eg, increase the time spent on Facebook to reach to the same effect that was initially experienced using Facebook). Mood modification is associated with whether Facebook affects current moods of the user, and relapse is linked with failed attempts of Facebook usage reduction. Meanwhile, withdrawal and conflict are related to negative conditions and effects because of failure in accessing Facebook, in which withdrawal is associated with negative conditions such as becoming restless because of failure in accessing Facebook, whereas conflict is linked with negative effects such as Facebook causing negative impacts on individuals’ current academic or professional life.

Research has revealed that Facebook addiction have caused negative psychological effects such as emotional problems, relational problems, health-related problems, and performance problems. In terms of emotional problems, Facebook addiction has been revealed to cause negative mood alterations such as depression and anxiety, development of deficient self-regulation, as well as task avoidance and procrastination. With regard to relational problems, Facebook addicts have experienced negative relationships in terms of family conflicts, impaired concentration at work or school, and problematic peer relationships, thus contributing to interpersonal relationship detriment. With regard to health-related problems, Facebook addiction has also been associated with sleep difficulties such as insomnia and somatic problems as well as poorer sleep quality. Meanwhile, for performance problems, addiction to Facebook has caused job losses and negative effects of self-reported work performance.

In my continuing education class the instructor had us look at the "Facebook Addiction Quiz," https://psychcentral.com/quizzes/facebook-addict-quiz/. Interestingly enough many people had "yes" answers to these questions. I am intrigued by this because I truly am not wild about social media. I use it for the Foundation, but overall, have migrated away from it. Initially because I felt the majority of users couldn't relate to my issues and it is very hard to see constant "happiness" or comparisons to other peoples' lives. Nonetheless, there is a part in the TED talk below that asks school aged kids to give up ALL social media for a week. The reactions were fascinating! Sure they had a hard time, some had a slip and sent a photo or a Facebook posting, but what the kids discovered was what was noteworthy! They found that they got their LIFE back by not tuning into social media. Instead, they had the time to go outside, to SPEAK face to face with people, and ultimately were happier about their new found freedom. 

Is Social Media Hurting Your Mental Health? | Bailey Parnell | TEDxRyersonU:


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