Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

December 27, 2021

Monday, December 27, 2021

Monday, December 27, 2021

Tonight's picture was taken in December of 2003. Mattie was a year and a half old and to get a photo for the front of our family Christmas card, we dressed Mattie up in a Christmas sweater and took him to Home Depot. Mattie liked and tolerated only two stores.... Target and Home Depot. I figured if we put him in a shopping cart and had him look at the holiday lights and plants in the store that this would distract him long enough so we could capture him in a photo. This was the photo on the front of our 2003 holiday card. 


Quote of the day: Today's coronavirus update from Johns Hopkins

  • Number of people diagnosed with the virus: 52,593,614
  • Number of people who died from the virus: 817,726


This year I decided to change my primary care physician. Not because I did not like my physician I had been seeing for 20+ years, but because I wanted access to a concierge physician. Someone who I could contact 7 days a week, 24 hours a day. I figured this would be helpful given that my parents are now living with us. I wanted the freedom and flexibility to contact a doctor on my terms rather than on theirs. Honestly it sounds good in theory, and probably some offices operate a concierge service in a more appealing and user friendly manner than the one we selected. 

The concierge practice I selected is with a physician who is a known quantity to me. In fact, he is the physician who started the primary care practice I have been going to for decades in Arlington, VA. So I know this physician and his reputation. However, for me having a relationship with a physician is crucial. We have to be able to understand each other and have similar communication styles. My former physician is very type A, not unlike me. She dots all her i's and crosses all her t's! I feel that when we are talking about my health, she is thorough and pro-active. My new physician is an engineer by training before becoming a medical doctor. His ability to converse and process information are slower and he has the need to give lectures and educate about esoteric information. I suppose that is fine on a good day, definitely NOT good on a bad day. Since November, this doctor has seen me three times. Yet each time I see him, it feels like this is his first time interacting with me. THIS DOESN'T EARN HIM ANY VICKI POINTS! I make a mental note of this because medicine has to have a human connection with me to be affective. 

Any case, this morning I called the doctor's cell number to report my sinus symptoms and to get advice. Instead of working with me by phone, he had me come in. Thankfully I had just finished helping my dad shower and dress. I wasn't happy that he demanded I come in to be seen. After all I picked this service so that I would have more attention and flexibility in how my care is delivered. 

I did go to the office and his recommendations were borderline nuts..... he wants me to take multiple showers and breathe in the steam, to try not to cough (like one can control this?!), and then what sent me over the edge was he took out paper and a pen and started to draw for me a picture of my sinuses! Again, I am all for education, but not when my head is filled with fluid and feeling like it could burst. I am signing off to rest and realize I have to take better care of myself in order to be able to continue serving my important caregiving role. 

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