Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

April 15, 2014

Monday, April 14, 2014

Monday, April 14, 2014

Tonight's picture was taken on April 4 of 2009. This was Mattie's 7th and last birthday. Next to Mattie was Meg. Meg was the last child life intern we experienced at Georgetown. Meg is a force, not unlike Mattie and she could hold her own with Mattie. Mattie gravitated to Meg immediately and I suspect Meg was given a heads up about Mattie, that he was one of Georgetown's more challenging little patients. That would be daunting to most new interns, but that did not seem to intimidate Meg (at least on the surface). She rose to the challenge. That day, she took Mattie into the child life play room and helped him decorate the room for his birthday party. I will never forget that room. I returned to this room today with eight high school girls to host an Easter Egg hunt for children and their siblings within the hospital. Some how whenever I enter this room, I am reminded of all the good, bad, happy, and tremendously sad moments within the hospital. 

Quote of the day: Even the smallest act of caring for another person is like a drop of water -it will make ripples throughout the entire pond...  ~ Jessy and Bryan Matteo


This afternoon, I met this lovely group of high school girls outside the Hospital emergency room and together we carried up eggs, baskets, and candy to the pediatric units. Two of the girls I knew already. The second girl on the left in this photo is Isabel. My faithful readers have heard me mention Isabel on the blog, because she is the young lady who introduced me to John Green's book, The Fault in Our Stars. Isabel and I have worked on many projects together, so we know each other well. Next to Isabel (the third girl from the left), is Margaret. I met Margaret through Isabel several years ago when she was involved in her Girl Scout Troop's Build-A-Bear project that was done with Mattie Miracle, in which 100 teddy bears were created and then hand delivered to children at Georgetown Hospital. 

I had the opportunity today to give the girls a brief overview of Mattie Miracle. Several of the girls are interested in working in hospitals. They also had the opportunity to tour the peds floor, and to hear about the child life profession and to ask both Katie and Jess (two child life professionals) questions about their career, its requirements, and the nature and complexities of their job. 

Linda, Mattie's Child Life Specialist, also ordered us wonderful Georgetown Cupcakes for the occasion. Georgetown Cupcake is very generous to the Hospital and truly supports all events hosted there. I remember my first Georgetown Cupcake! It wasn't in the "free" world. It was confined to the PICU. In my mind, Georgetown Cupcake will always be associated with cancer. With that said, they are still my all time favorite cupcakes.

The high school girls lined/hid the hospital hall ways, the family lounge, and the playroom with eggs! I thought the hallway bench looked very festive!








The siblings of pediatric patients were able to hunt for eggs today in the hallways, family lounge, and play room. As you can see they were RUNNING everywhere! I never saw eggs being scooped up so quickly. It was like watching the human vacuum.

Children confined to their rooms were brought baskets filled with eggs. Though they were unable to participate in the event, they were not forgotten. The high school girls were escorted by Jess from room to room to drop off baskets to the oncology patients. 


I am not sure why this part amazed me so much! But after the eggs were accumulated, the kids wanted to come back to the playroom and count their eggs. In a way, it was like a competition to see who collected the most. Hearing them count was a riot! Some needed guidance on numbers, but it was a great teaching tool, candy and Easter eggs! I can't think of a better way to learn about numbers. 

More counting going on! 













Doesn't this look like sheer Egg Happiness!????

When I left Georgetown today, I was certainly happy that we could make these children feel special! But I would say, I definitely felt off. I was off because so many of the wonderful faces of people I once knew and loved no longer work at the Hospital. To me this is another loss, with each person leaving, a piece of Mattie is taken. All that is left is four walls, a ceiling, and a floor. I find this greatly upsetting. 



This evening, Peter and I had the opportunity to attend a community gathering in honor of our April item drive. This gathering was held by our new friend and supporter, Linda. I became connected to Linda, through my friend Christine. Linda suffered a loss of a colleague at work a few months ago, and when she suffered that loss, she connected with me and made a very generous donation to the Foundation. From that one donation, our friendship has evolved. Not because of the contribution, but because we take the time to emotionally want to connect with each other, learn about the other, and we enjoy all our email exchanges. Tonight was the first time I got to meet Linda face to face. Isn't it ironic, how you write to someone often and then you get to meet in person, and you feel like you know them already?! Peter and I are grateful that Christine connected us, we are honored that Linda reached out to us, and are very moved that her friends and neighbors would bring us items and toiletries to stock our snack/item cart at the Hospital. 



Linda gave me the opportunity to tell her neighbors and friends about Mattie Miracle and I also explained to them where their items would be going and how they would be used at the Hospital. Putting this into context helps otherwise the drive seems meaningless. But what struck both Peter and me, is this is one special community. These folks get together like this either weekly, but certainly monthly! I am not sure how they manage this, but they do! Socializing and being neighborly are important to them. Very different from our experiences in DC. Check out this adorable Bunny Cake! He was a red velvet cake!







To me this is a photo that captures the ultimate grass roots effort. Peter and I may have started Mattie Miracle. But our friend Christine promoted it to her friend, Linda. Linda then took the baton and carried it to her neighborhood. Which brings us to tonight's item drive! From left to right is Linda, Vicki, and Christine. 


All the items that people dropped off tonight! My car trunk is now stuffed!!! A great problem to have!


















I end tonight's posting with this beautiful needlepoint. Linda created this wonderful gift for me as a surprise. I think it is lovely, I appreciate that she kept the details of the seven rays of the sun (for Mattie's seven years on this earth) and in the lower right hand corner added a little lego piece! Just adorable, intricate, and unique! Not unlike Mattie. 




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