Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 16, 2018

Tuesday, January 16, 2018

Tuesday, January 16, 2018 -- Mattie died 435 weeks ago today.

Tonight's picture was taken in January of 2003. Mattie was nine months old and at that point LOVING his exercise saucer. If Mattie wasn't in my arms or in the baby back pack, then he was in this saucer. Mattie loved the independence the saucer gave him and literally he would jump up and down so hard in this thing, I thought he was going to take off like a plane. A friend of mine sent this saucer to us as a gift. Probably when Mattie was 3 months old. When Mattie first tried the saucer, he was scared to death of it. But over time, he conquered those fears and loved playing it!


Quote of the day: Genie showed that lexicon seemed to have no age limit. But grammar, forming words into sentences, proved beyond her, bolstering the view that beyond a certain age, it is simply too late. The window seems to close. ~ Susan Curtiss, a UCLA linguistics professor


This horrific story about the Turpin family, living in Southern California, broke all over the news yesterday. This is a family with 13 children, ranging in ages from 2 to 29 years. However, the children are so malnourished that rescue workers thought the 17-year-old girl who called 911 was only 10, given her small size and emaciated appearance. We are in the year 2018, and I can't believe such stories are still possible in the United States. As soon as I read about these children, I was instantaneously  transported right back to graduate school. 

When I was getting my degree in counseling, I will never forget the first time I saw the documentary on Genie, the wild child. Genie was 13 years old in the 1970's, and was abused and tortured by her father since a baby. When Genie was found, she couldn't walk, talk, toilet herself, and the list went on. Genie's story was heartbreaking, and reading the story of the Turpin children made me reflect on the case of Genie.  

I included an article about Genie and the incredible 60 minute video entitled, Genie: Secrets of the Wild Child. I saw this video in graduate school, and I found it SO PROFOUND that I bought it, showed it to Peter, and when I became a professor, I incorporated it into my lectures. I am not sure what was worse.... the fact that Genie was tortured as a child, or that she was discovered by researchers at UCLA, enrolled into funded linguistic trials and got all sorts of attention, but when progress wasn't being made (as Genie was never able to learn grammar and speak in sentences) and funding was being pulled, the interest in Genie vanished. In a way Genie was abandoned and continues to live in the California State system. I am not doing the story its full justice, which is why I included the links below. I think the scientific community learned from Genie's case that guidelines and safeguards for human subjects HAD TO BE put in place for ALL future studies. A study like the one Genie participated in would NEVER be allowed to take place today. 

This is what Jay Shurley (a psychiatrist) had to say about Genie: "She was this isolated person, incarcerated for all those years, and she emerged and lived in a more reasonable world for a while, and responded to this world, and then the door was shut and she withdrew again and her soul was sick.” 

How does this happen? In Genie's case, it all started with an unstable father, Clark Wiley. He grew up in the foster care system himself. He was a controlling man who hated noise, and he did not want children. Yet children came. The first, a baby girl, who died after being left in a cold garage. A second child died from birth complications. A third, a boy named John, survived, followed five years later by Genie.

When a drunk driver killed Wiley’s mother in 1958, he unraveled into anger and paranoia. He brutalized John and locked his 20-month-old daughter alone in a small bedroom, isolated and barely able to move. When not harnessed to a potty seat, she was constrained in a type of straitjacket and wire mesh-covered crib. Wiley imposed silence with his fists and a piece of wood. That is how Genie passed the 1960's.

Unfortunately none of this turns out well. Genie lives in the adult care institution in California, and John died. John had a daughter, Pamela, who grew up with a drug problem and was charged with endangering her own two daughters. Pamela also died. My point to this is such profound dysfunction and abuse, doesn't end with one generation. Instead, with the case of Genie, we are talking about four generations impacted by this terror. 

The story of Genie is absolutely haunting and to me and the story of her life is worth telling. There should be a moral message from Genie. We shouldn't want to sweep up this gruesome picture up and make it go away. Of course as a mom who lost a child to cancer, I can not relate to these deranged parents on any level. I am sorry if they had a tough childhood, underwent atrocities of their own.... HOWEVER........this is NOT an excuse or gives them a free pass to abuse their own children. May we all learn from Genie.


Children found shackled and malnourished in Southern California home; parents arrested:

http://www.latimes.com/local/lanow/la-me-ln-perris-children-shackled-20180115-story.html


Starved, tortured, forgotten: Genie, the feral child who left a mark on researchers:

https://www.theguardian.com/society/2016/jul/14/genie-feral-child-los-angeles-researchers


Genie: Secrets of the Wild Child (60 minute long video):

https://topdocumentaryfilms.com/genie-secret-wild-child/


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