A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



January 9, 2018

Tuesday, January 9, 2018

Tuesday, January 9, 2018 -- Mattie died 434 weeks ago today.

Tonight's picture was taken in January of 2009. Mattie was home between treatments and as you can see he had a visit from JJ, our resident Jack Russell Terrier. JJ and Mattie practically grew up together. JJ inspired Mattie to want to have a dog of his own. When Mattie died, JJ claimed an old sandal of Mattie's and apparently slept with it for a year. Interesting no? I would say there was a special connection there. 


Quote of the day: Depression affects almost 80% of migraine sufferers at one time or another. People with migraine, especially chronic migraine, also are more likely to experience intense anxiety and to have suicidal tendencies. If we want to live happy and joyful lives with migraine, it is vital that we acknowledge and deal with the emotional realities of the disease. ~ Sarah Hackley


As some of my loyal readers know, I had a cluster headache for about a month before Christmas. I thought I was going to lose my mind. Then it went away! But yesterday a migraine began and it has continued into today. It is my hope it is a migraine and not a cluster headache and it goes away soon. I could explain how debilitating this is, but frankly when I tell people I have a headache, they think..... sure I know what that feels like, just take a couple of Tylenol. Which is why I usually don't talk about my headaches to people, because the pain is hard to describe and is unimaginable. When you feel like this, it is hard to be upbeat about anything, to really commit to anything, and worse as I am now moving full swing in Foundation Walk plans, I wonder.... do I really have the energy for this? I have no answers, but lots of questions.  

Prior to Mattie's birth, I may have gotten the occasional headache. But on the day I went into labor, I suffered my first migraine. So since April 4, 2002, I have not known a single day without some kind of headache. Sounds incredible no? But it is my reality. I am now onto neurologist number 4. The others couldn't do anything for me. Not that the current one can either, but at least he is honest about the limited medical state of affairs for people like me. Basically there is no known drug to prevent or stop my chronic daily migraines and cluster headaches. Which is unfortunate, because when you are dealing with this level of pain, you do wish there was something to turn to. Any case, I am signing off because staring at a computer screen isn't the best for me. May tomorrow be a better day. 

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