Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

September 6, 2019

Friday, September 6, 2019

Friday, September 6, 2019

Tonight's picture was taken on November 18, 2008. Mattie was in the hospital recovering from his second major limb salvaging surgery. With that surgery, he had his right leg bone, left arm bone, and left wrist bone removed and replaced with a prosthetic. I would say that surgery was the true beginning of the end. Mattie was never the same after it, as he could no longer walk, dress himself, or go to the bathroom without assistance. It was a nightmare for Mattie to not only be dealing with cancer, but also a profound physical disability. I snapped this photo because for the first several days post surgery, it was hard for Mattie to move from bed. His limbs were all wrapped up, he had drains at each surgical site, and he was dealing with a lot of pain. Despite all of that, Mattie was interested in playing, and you would be amazed how many things we actually did to entertain him while bed bound. 

Quote of the day: The objective of cleaning is not just to clean, but to feel happiness living within that environment. Marie Kondo


I devoted the day to 'cleaning' out our walk-in closet. I absolutely hate this chore! My lifetime friend Karen, introduced me to Marie Kondo. Marie is Japanese and she specializes in helping families organize and clean out their homes. I watched an episode of her show last weekend on Netflix. She is absolutely adorable, calm, and seems to interact with the spaces she is assessing. Almost as if they were animate objects. 

I think I must have spent 8 hours cleaning this closet. I am not sure it brings me happiness as Marie Kondo suggests. Mainly because within this closet are Mattie items and of course Foundation items. Organizing Foundation items are easy. Assessing and figuring out what to do with Mattie items are much more complex. Of course this isn't my first time cleaning out this closet or going through Mattie's items. I remember the first time I went at it back in 2013. All I can say is WOW! It is not easy going through your deceased child's room, clothes, toys, and mementos. Frankly it is just NOT right, but I knew seeing Mattie's room in total chaos was not doing any justice to his memory. So that forced me to address the incredible hoard that was going on in his room. It maybe hard to imagine, but every day Mattie was on his cancer journey, he received gifts. After a while, these items started piling up, piling up and PILING UP. So between Mattie's items pre-cancer and the items we accumulated while in treatment, his room and our home were overwhelming. 

This may not look like an improvement, but I disposed of a lot of paper and am donating a ton of items. It is now a usable closet again, where I can find things.

Of course once you start on one closet, it becomes a bit of a domino effect. As now I want to address other areas in our home.  
If addressing this closet wasn't enough today, we also had one of our air conditioning units flood today. All over our floor! I have been working all day on drying the floor, but unfortunately the wood buckled. Thankfully Peter knows how to fix the floor, as he got good practice in the spring, when our neighbor's tub in the unit above us flooded and came through our walls and into Mattie's room. Quite a Friday here. 

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