Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

October 9, 2019

Wednesday, October 9, 2019

Wednesday, October 9, 2019

Tonight's picture was taken in October of 2002. Mattie was six months old and checking out this pumpkin place mat  Peter's mom sent him in the mail. I am quite certain Mattie loved the color orange from day one. Which is why Mattie Miracle's signature color is orange. 



Quote of the day: People think grief somehow fades with time. "Time heals," they say. What a crock. There's no cure for this. You can't accept it. You can't absorb it. Grief is a rabid animal you hold at bay. ~ The InBetween, "Made of Stone" 


The saga of the tooth continues. What started out with routine maintenance in April of 2019, has become a LONG journey. I would never have guessed trying to replace my old silver filing with a partial crown could be so disruptive to my life. In the process of this ordeal, I have come to see that I don't LOVE the way my dentist's office is managing me or the whole situation. 

I continue to have nerve pain and my dentist recommended I see an endodontist. A dentist with more training, who specializes in nerve issues and root canals. Given that I call my dentist's office so often, I now know his office staff! I also know my dentist typically refers patients to one or two endodontic practices in DC. Not the one he referred me to! In any case, as soon as my dentist said I need to see a specialist, I was pro-active and found two endodontist offices I really liked and was planning on contacting them. I was until my dentist wrote me a referral to another office. Not one of the two I researched. Naturally if your doctor recommends someone, you take that seriously. So today, I was scheduled to meet the endodontist recommended to me by my dentist. 

Well the appointment never happened. It did not happen because I canceled it. Have you ever gotten a bad vibe from a doctor's office? Well this is the feeling I developed regarding this endodontist practice. I did not like their website (it seemed simplistic and not professional), but their front office staff was down right loopy. I had asked them three times to get notes from my dentist about my issue and recent visits. Needless to say they never did it. Then last night before I went to bed, I decided to look up both endodontists in the practice to see if they were licensed in the District of Columbia. How do I know to do this? I know because I have been a chair of a DC licensure board for years. To me, having licensure is important, as it safeguards the public and also assures a certain level of education, training, and experience from a health care professional. 

I literally lost it last night when I couldn't find the licensure information on these doctors through the DC Department of Health's website. This finding triggered two emails. One to my dentist and the other to my own licensure board staff. As they have access to a more comprehensive database to look up professionals. It turns out after some digging, the staff did find out that the doctors were licensed. However, by that point I felt it was a sign. So I cancelled the appointment and instead called the practice I wanted to see. Mind you my dentist typically sends people to the practice I researched and liked. However, he is trying to expand his network of providers and basically wanted me to try this newer practice. NO THANK YOU! Given I have had a nerve issue since May, I want a professional who has seen these issues for many many years. 

In any case, for my local readers, if you want to look up a health care professional in DC and find out if they are licensed, go to:
https://doh.force.com/ver/s/. I think it is important patients know who they are seeing! DC isn't the only "state" with such a website. Every state has its own department of health which licenses professionals and allows you to "look up" the license of a behavioral health or medical health care professional. 

Perhaps it is my experiences with Mattie, or maybe it is just me. I can get vibes about doctors and their offices, and once I get that bad feeling, there is no way I can turn back. I view this as another lesson I have learned from the Mattie playbook!

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