Tonight's picture was taken on Halloween of 2008. Mattie had two trick or treating opportunities that year. One at the hospital and the other with his friend in Alexandria, VA. Mattie was very strategic about his costume that year. He was still recovering from limb salvaging surgery on his right arm. It was wrapped in a cast and he moved gingerly because of this. Mattie was also very cognizant that he was different from his peers. So when his art therapists and child life specialist allowed him into the clinic room to pick a costume without other patients around, he loved it. He honed into this costume because he felt it would cover his arm and bald head and that others would not realize he was sick.
Quote of the day: Today's coronavirus update from Johns Hopkins.
- Number of people diagnosed with the virus: 46,071,178
- Number of people who died from the virus: 746,818
I got up at 6am today because I had a lot I wanted to do. Somehow no matter what time I get up, I am always scrambling to get things done. We had the HVAC person over today to help me diagnosis the mysterious smell. He went in the attic, we looked at all the vents, and he even had me go up to the attic to smell it myself. It smelled fine. So now we have deduced it isn't coming from the air vents. The drains have been cleaned, so it isn't from the drains. The HVAC person said it has to be something in the room. The only two new things in the room are Indie's cat tree and a rug I bought for Peter's office. We are taking each out separately to see if it makes a difference. If it truly is something I bought that has this smells, I am going to be livid. Though I suppose it is better than a systemic house issue. Either case, I have been at it with this smell for weeks!
In addition to the HVAC person we had the fence guy over to measure again. Another headache which we did not need. Of course we are still getting around the clock Amazon deliveries for our item drive. I am being proactive and have scheduled item drop offs at Children's Hospital at Sinai in Baltimore and at NIH in Rockville, MD. I would like to get as much done before I have to leave for Los Angeles on November 18. Of course once I do the LA move and help my parents transition here, I won't want to deal with the candy and item drive boxes. Not to mention that the boxes are practically taking up an entire room in our home.
Also on my list today was to run to our Foundation's post office in Arlington to check the mail and to pick up all the stamps we need for our December mail mailing. Certainly I could get this at any post office, but Darryle at the Shirlington Post Office takes good care of Mattie Miracle and he has been helping me with our mass mailing for over a decade now! Darryle knows what I need and he gets the job done right! People like Darryle are worth the extra trip, and I am thankful to have his help. If I could only clone him!
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