Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

November 4, 2022

Friday, November 4, 2022

Friday, November 4, 2022

Tonight's picture was taken in November of 2008. Mattie was home, recovering from his second limb salvaging surgery. This was a huge surgery that involved Mattie's right left, left arm, and left wrist. Therefore, we needed a hospital bed on our first floor as Mattie couldn't do stairs. Our living room looked like a hospital, but we were determined to do whatever it took to stabilize Mattie. As you can see, Patches was thrilled we were home and she spent a lot of time right next to Mattie. It was no wonder why I nicknamed Patches, "nurse Patches." I found whenever I was sick, she stayed by my side and she did the exact same thing with Mattie. 


Quote of the day: You don’t go around grieving all the time, but the grief is still there and always will be. ~ Nigella Lawson


Yesterday evening Peter lit a fire outside. It has been a glorious weather week and I know when we are stressed out having access to greenery and the outdoors is crucial. It helps to restore our sanity. 
An amazing sunset. I truly never paid attention to how special the light is in the Fall. It is a certain level of crispness in the air and in the lighting. I have no idea why I never noticed this before. But I do think with age, different things become important to us and more noteworthy. 
We are surrounded by trees. Which is very important to us. Seeing the sun shining on the autumn leaves captures Peter's and my attention. 
What is so funny about this photo is can you guess where Peter is? Ironically I never have to look too hard, I just have to find Indie, the cat. She is always glued to Peter, almost as loyal as a dog. She is always by his side. 


I got up at 6am in order to get my dad ready and get my mom out the door at 9am. I took her to my hand doctor, which was about a 30 minute commute each way. Thankfully we were going with the traffic this morning, making the commute to Maryland much smoother. My mom's hand has been bothering her since March. Now 8 months later, I finally was able to get her a doctor's appointment. Because her situation wasn't an emergency, we had to wait all these months. But she wasn't happy about it and has been in pain, with limited ability to use her hands. I prepped my mom that this doctor isn't touchy feely per se, but he is kind enough and HIGHLY competent. I know this because I saw him a few years ago when I dealt with a trigger finger. He diagnosed it and treated it on the spot, and the problem is much better now. The doctor is a New Yorker, and he went to Albany Medical School, a school close to where I went to college and several of my friends graduated from Albany Med. 

My mom LOVED the doctor and he was actually very chatty with us. I do find that doctors for the most part understand that I am there with my parents, and many make an effort to connect. When they do this, this captures my attention, because it tells me about their humanistic priorities. Long story short, my mom has tendonitis, and he gave her a cortisone short in the wrist area. Currently she is wearing a brace for the next ten days, but she is already feeling relief. Whenever I go with my mom to the doctor, there is a high level of anxiety. So I know in turn, I need to take over, manage all the logistics, and help to keep her calm. I do think on some level that I store this stress somewhere, and unfortunately the place is my head. I have had an intense migraine since Wednesday and it shows no sign of lightening up. 

Meanwhile, my dad started a higher dosage of Ritalin today, and I am hoping to see some sort of change in his energy level this weekend. Yesterday I was in a horrible mood, but today, I feel like I can manage. I get bouts of feeling overwhelmed and when in that state, it is hard to think things will get better. As I learned from Mattie's cancer diagnosis, I can only take it one day at a time. 

No comments: