Tonight's picture was taken in January of 2009. This was classic Mattie. He was in the middle of a physical therapy session in the hospital hallway, and don't you know it, he had an entourage. Mattie's psychosocial team was comprised of incredible women, who never came to a therapy session empty handed. As you can see Mattie was opening boxes, checking things out, and no therapy session was ever ordinary. Mattie's physical therapist, Anna, learned early on that she had to think way outside the box to get Mattie engaged, participating, and buying into the therapy process. She was the best and I will always be grateful for their incredible therapeutic connection they had with one another.
Quote of the day: When you adopt a dog, you have a lot of very good days and one very bad day. ~ W. Bruce Cameron
The highlight of my day is that I went out with my friend Margy's daughter. Margy lost her battle to cancer in 2021. Her death was another huge loss in my life. Margy left behind many gifts for me such as her husband, daughter, and sisters. All of whom are big supporters of Mattie Miracle. In fact, Mattie Miracle runs the M&M (Margy and Mattie) Wishes program (which gives grants to children with cancer) in memory of Margy and the amazing childhood cancer advocacy work she did for over twenty years. Being with Margy's daughter today made me feel at times like I was actually with Margy. There are so many similarities and like my time with Margy, Kristy and I can talk up a storm too. In those two hours, I felt more engaged with the world and I know my mom enjoyed the conversation too.
I think it is rather ironic that in the last four days, I have heard the song, Brave (video below)! I happen to love this song and used it for one of our Foundation Walk videos. I heard it at the grocery store and now today while having lunch. Naturally I know this song wasn't played just for me, because it is a popular song, it isn't unusual to hear it when out and about. But given the many adjustments in my life, the words mean so much more to me now. When I hear it, it is like the inner mantra that plays in my head. It takes a great deal of bravery to even get out of bed in the morning and then to have a full day of caregiving, putting out figurative fires, and managing non-stop tasks.
Each day I ask God for strength, courage, love, bravery, and most of all hope.
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