Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 24, 2024

Wednesday, January 24, 2024

Wednesday, January 24, 2024

Tonight's picture was taken in January of 2009. Mattie was in New York City, in order to start his experimental treatment. When we checked into the hotel, Mattie's child life specialist back in Washington, DC sent a care package. Filled with all sorts of items to keep Mattie busy. It was such a thoughtful and meaningful gift, and it reminded us of the caring and loving team we had back home. I will never forget these incredible women and how much they assisted Mattie and me. On an aside, do you see the fleecy blanket near Mattie? Well toward the end of Sunny's days with us, I pulled out this blanket for him. He absolutely loved it and I believe that Mattie was guiding Sunny to heaven. 


Quote of the day: I thank the Lord that there is one thing in this world that money can’t buy, and that is the wag of a dog’s tail. ~ Josh Billings


I LOVE this face! Two weeks ago today, I put Sunny to sleep. How I miss those eyes, nose, face, and my furry companion. In so many ways I think Sunny was part human. He was deeply feeling, loving, loyal, and helped me re-engage with the world when I thought my heart was completely broken after Mattie died. 

I still come downstairs in the morning and look for Sunny, I still get confused when cooking, because I don't have a pal to cook extra for, and most of all, I miss my Sunny hugs, our deep stares into each other's eyes, and the love that only Sunny freely gave me. 






This morning after getting my dad to his memory care center and helping my mom process more health insurance paperwork, I sat down and contacted Cigna. Cigna is my health insurer. Though it is January and my Prolia injection for bone density has to be administered in the spring, I know from previous experiences that I have to start the process early because between insurance and my dysfunctional doctor's office, it can take months for me to get the drug. I wasn't sure how the call with Cigna was going to go, but my representative's name was "Happy." She said she tried to live up to her name. She did! Honestly talking to her today was like receiving a gift. Imagine a customer service rep who actually listens, wants to help and is pro-active at solving the problem. Literally after explaining the process I needed to follow, she put me on hold and spoke to my doctor's office. Happy confirmed to me that this is where the problem lies, not with my insurer. My doctor's office even gave Cigna a hard time. In any case, Happy told me the difference between a medical benefit and a pharmaceutical benefit and the process I needed to follow to get the medication as a medical benefit. 

But here's the kicker. My doctor's office will not order me the drug as a medical benefit. They have given me some sort of convoluted explanation that prevents them from doing so. They are willing to order and administer the drug to me in their office, but it would be billed as a pharmaceutical benefit and I assure you the drug is expensive this way (close to $2,000). I have paid it in the past, but I want to see if it is more economical as a medical benefit. In order to bill it as a medical benefit, they have to send the script order over to an infusion center. I would have to get the injection at this center rather than the doctor's office. I will try it, but overall I like to stay away from infusion centers. One of the many types of drugs administered at these centers is chemotherapy. As strange as it sounds, the impact of Mattie's diagnosis will always be with me and being around these types of infusions sets me off. But of course my doctor's office could care less! 

This evening, I met with my therapist. One of the things I shared with her were excerpts from this blog. I have been writing for 15 years, DAILY! I have NEVER missed a day. Writing for me is therapeutic. Remember I started writing under the worst of circumstances (Mattie undergoing cancer treatment). In a way writing is a passive process, because I am expressing myself, but there is NO response, no cross talk, and typically little feedback. But that is okay, that doesn't stop me from writing. In any case, I wanted to share with the therapist some of my thoughts and feelings. After I read a few submissions, I could see she was visually moved. She literally said to me.... "you are a beautiful writer!" AHHHH, how nice to hear. When I was a teenager, I remember my English teacher told me often.... "you are a writer!" I loved Mrs. Van Epps, who unfortunately died in TWA flight 800. I will never forget learning she was on that flight, because this teacher has a profound impact on my life. She gave me the confidence to express myself in word! I am quite certain, more than ever, that I do have a book within me and perhaps that should be what motivates me now to keep living and moving forward. 

On my way home tonight, my neighbor had me stop by her house. She just got back from her trip and she bought me a pie today! The pie was to say how sorry she was about Sunny's death. 
A sweet ending to a very long and emotional day. 


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