Tuesday, February 27, 2024 -- Mattie died 752 weeks ago today.
Tonight's picture was taken in February of 2009. Mattie's classmates sent him valentine's day cards, treats, and this HUGE lollipop! Mattie couldn't believe that this lollipop was as large as his head. The kindness, generosity, and support Mattie received from his community will never be forgotten.
Quote of the day: Dogs…do not ruin their sleep worrying about how to keep the objects they have, and to obtain the objects they have not. There is nothing of value they have to bequeath except their love and their faith. ~ Eugene O’Neill
After my usual morning of tasks, I sat down at the computer to continue work on Mattie Miracle's Walk website. While doing this, I was juggling emails and I saw one come in saying that the Foundation owed $1,000! It wasn't an invoice I was expecting. It was submitted by an on line bill payment method, and I was determined to see the invoice. Once I figured out how to sign in, I then looked at the invoice. It was from a company in Florida. I quickly sent the invoice to our legal team and then decided to reach directly out to the bill paying company.
Needless to say, I wasted over 45 minutes on this problem. I finally resolved the issue, got the invoice removed, told the company this wasn't meant for me and that I wasn't paying it. While I was working that angle, the Foundation's lawyer sent me information about the company in question. Amazing what lawyers have access to!
Turns out that one of the holdings of this company belongs to one of our corporate sponsors. I believe our sponsor was submitting an invoice for a Walk sponsorship to their parent company in Florida. Needless to say, I feel like I went full circle on this issue today and reached out to our sponsor to explain what transpired and how the invoice was misdirected to us.
Though my dad is no longer coughing, he doesn't have congestion or a runny nose, he remains extremely exhausted. In fact, other than going out to have frozen yogurt today, he spent the day sleeping. Of course this is a concern to me, because all the sleeping makes him lose further ground. His doctor has increased the dosage of his memory medication, with the hopes that we can keep my dad at his current mental state for another year. That said, the doctor also noticed a big decline in my dad's memory ability at his physical a few weeks ago. Since I think the testing done to assess memory is POOR at best and misses most things, it speaks to the profound decline of my dad, if this test was able to elicit a meaningful result.
As for myself, I am not sure what to say other than I exist. I go through my daily chores, tasks, and responsibilities, but I feel like that is the extent of my life. My life has come to a crashing halt and I think my parents finally understood today that without my role as caregiver, I would see no point right now in living. This is not how I thought my life was going to be, and frankly no amount of talking or connecting with others will change my reality.
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