Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

February 28, 2024

Wednesday, February 28, 2024

Wednesday, February 28, 2024

Tonight's picture was taken in February of 2009. Believe it or not this was a photo of a physical therapy session with Mattie. I am telling you there was always an entourage and  a lot of activity in order to get Mattie engaged, participating, and moving his body. I will never forget these moments and the amazing efforts of Mattie's team. 

Quote of the day: I wanted to spend the rest of my life with you; but instead I am deeply honored knowing you spent the rest of your life with me. ~ Camille Marcotte


Seven weeks ago today, I put Sunny to sleep. It feels just like yesterday, yet I know without a doubt life in our home is not the same. I miss that beautiful and loving face. This photo says it all.... he was a happy pooch, he loved his family, and this was his pose when he was ready to play! 

I am not sure if you can see the treat on the floor in front of Sunny? It was a pig ear, which we used to purchase for Sunny at the farmer's market! It was a high value treat. As such, Sunny wouldn't eat it right away. He would instead carry it around the house. Room to room for days. Maybe after a week or longer, would he then begin crunching on the ear! This behavior always made me chuckle.



This morning, my mom had a physical therapy appointment at 9:15am. My mom gave the therapist a hard time on Monday, telling him that she did not like her 12:15pm therapy time slot. So the therapist tried to accommodate her today by coming early! What a nightmare. No matter how many times I told my mom about the timing of today (and it was even written on her calendar upstairs), she just doesn't get it correct. 

At 6:45am, I came downstairs in my pajamas to feed Indie and to get the newspaper on the driveway. The next thing I knew, my mom was coming down the stairs, fully dressed and ready to start her day! That may not sound unusual, but it was! Typically on any given day, it takes her 4-5 hours to get ready in the morning and then she doesn't get downstairs until 10am. So the fact that she was downstairs before 7am, meant she must have been up at the crack and dawn and couldn't remember (nor knew where to find the information) what time her therapy appointment was today! 

Instead of making my tea and going right back upstairs to get myself showered and dressed, I had to stop what I was doing and make her breakfast. In the midst of making her breakfast, I could hear my dad walking around upstairs. It is easy to hear because he uses a walker and it is a very distinguished sound. Any case, I got my mom situated and then decided to go into my parent's bedroom to check on my dad. Sure enough he was VERY confused. Confused because my mom was already up, dressed, and downstairs. He pays attention to her movements! Therefore, in his mind that meant that he had to get up and the morning process was going to start. I found him sitting on the chair in the bathroom with his depends off. He literally convinced himself that I was going to be there within minutes to shower him. Except that was FAR from reality! 

My mom truly doesn't get or take any responsibility for my dad. She could have explained the morning process and timing to him. But then again that would mean she was in touch with reality and knew about the timing herself. Which clearly she didn't! I am glad I checked on my dad because if I hadn't, he would have been sitting in that chair for 90 minutes until I showed up. 

I am noticing my dad is more disoriented than ever. Last night for example, I put him to bed at 9pm, because he was exhausted. At 10pm, I heard him walking around. I went into the bedroom to see what he was doing, and sure enough he was up, threw his pajamas off and onto the floor, and was getting ready to start his morning routine. Despite the fact that he has a HUGE clock in his bathroom and it was pitch dark outside, he can no longer use cues around him to orient himself to the time of day. 

Needless to say, I feel like I am constantly on high alert. If this was the only issue I had to contend with all day, that would be more than enough. But this doesn't even scratch the surface of my days. At some point today, someone from my dad's memory care center called me and then emailed. I never met her before. In any case, she wanted to touch base with me, and encouraged me to call her back. I did email her back and asked her point blank, why she was reaching out to me now. Especially since my dad has been at the center for two years already! I wanted to know what prompted this reach out. At this point in my life, if you aren't helping me, then I deem you as part of the problem! 

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