Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

December 11, 2024

Wednesday, December 11, 2024

Wednesday, December 11, 2024

Tonight's picture was taken in December of 2002. It was Mattie's first Christmas and it was an exciting time in our lives. Becoming a parent was a huge responsibility and there were NO HOW TO manuals to be a good parent! We had no family locally and I look my role very seriously. Mattie was born on and he challenged me to always think outside the box. As I always say, Mattie was my greatest teacher. Looking back on this moment in time, I may have felt stressed and anxious because I wanted to do a good job, but it truly was the happiest time in our lives, and we didn't even know it! 



Quote of the day: When you fully trust a person for life, you get one of two results. You either get a person for life or a lesson for life.  Unknown


This morning, after coming out of the shower, I heard a crashing noise. I was in a panic, because I thought either one of my parent's fell or worse my mom fell down the stairs. I ran out of my bedroom and what I saw was a picture of Mattie had jumped off the wall and slid down the entire staircase (see what a long way down this is!!). Given that I thought glass would be all over the place, I had to find shoes. When I walked down the stairs, it was miraculous. The picture frame wasn't damaged and the glass was intact. I have NO IDEA how that is physically possible given the distance it traversed. I don't know if you believe in signs or not, but I do! To me, Mattie was telling me something. I believe Mattie sees everything that has transpired and he is literally telling me, that his dad is headed for a massive crash and burn. 

I saw this quote tonight and it immediately jumped off the page at me. Mainly because it is spot on. I trusted Peter and I thought given our decades together, I had a husband for life. The resulting feeling of this broken trust is betrayal and violation. Yes I feel violated. Not physically, but emotionally. My friend in England (who I met in an on-line support group) and I write to each other daily. We have been doing this for close to a year. My friend was telling me a story today about another woman facing similar issues as us. This woman has decided she can't take the pain anymore and is looking into physician assisted suicide. I was deeply, deeply sorry to hear this news. This may sound extreme, and you maybe asking yourself, where is her support system? But having a bird's eye view into a similar nightmare, I can understand how the deception, gaslighting, and cruelty absorbed over a significant period of time can play games with your head. It can impact how you feel about yourself, your identify, your trust in your own instincts, and most definitely it changes your future. The hope you once had is gone. The question is how do you rebuild? Do you want to rebuild? These are questions that no one can answer for us, and the typical support that may work for other issues in life, really doesn't work for this one. 

After dropping my dad off at his memory care center, I ran some chores, and then came home to work on more Foundation tasks. On top of that, I dealt with several of my parent's doctors (either issues with their portals, billing, etc!). Later in the day, I took my mom out for tea. While out, I got a message from my plumber... yes we are buddies, and he let me know that his baby was just diagnosed with an orthopedic issue that requires extensive surgery and long term rehab. Naturally he and his wife are stunned and devastated. I empathized and tried to put this into context for him. As long as modern medicine can address an issue and there is a medical plan.... then it is a blessing. Since Mattie was diagnosed with cancer and has died, I do find that people come to me when in a crisis. Not that I have solutions, but I have empathy and perspective. The many lessons I learned from Mattie. 

Last night, I snapped this photo and sent it to Linda, Mattie's child life specialist. Linda gave Mattie this tree during Christmas of 2008. Mattie loved this tree and I wanted Linda to know that the memory of our time together is alive and well in our home. I will always be grateful to Linda, Jenny, Jessie, and Anna (Mattie's child life specialist, art therapists, and physical therapist). I wouldn't have made it without them, and they are the reason why Mattie never refused returning to the hospital for treatment.  
When I returned home this evening, I found this beautiful butterfly card in my mailbox. As most of my blog readers know, going to the mailbox makes me nervous, as I never know what surprise bill will be awaiting me! This butterfly beauty is a wonderful Mattie reminder that he with me always. 
My good friend Denise sent me the butterfly and these wonderful chocolates! I am deeply appreciative to have the support of friends, blog readers, and I value every text, email, and message sent to me. As it truly takes great effort to navigate through each day. 

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