Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

February 20, 2022

Sunday, February 20, 2022

Sunday, February 20, 2022

Tonight's picture was taken in February of 2009. Mattie was home between hospital treatments and wanted to set up his tents and tunnels! So naturally we did and we created a way for these things to connect together. Mattie loved it. Despite his physical disability, he still had no problem scooting around on his backside!



Quote of the day: Today's coronavirus update from Johns Hopkins

  • Number of people diagnosed with the virus: 78,468,292
  • Number of people who died from the virus: 935,174


Peter is on his way back from Boston today. He sent me this photo of this hand made Italian tablecloth. A piece his mom wants to give to me. I naturally accepted the gift, because I think it is a work of art, but I also wanted it because I remember this tablecloth on his mom's table during family Easter celebrations. The photo doesn't do it justice, as it is a lovely spring pink. 

I have to say that it isn't easy to see our parents (mine or Peter's) start giving things away. It is not like when I give things away, instead, their items are being dispersed because they understand with age that there is no purpose on holding onto things. Instead, they would prefer someone take the items, appreciate them, and put them to good use. 

All I know is I have been seeing lots of things being donated since June of 2021, when we were digging out of our townhouse and trying to pack it up. Then I repeated the process in November/December 2021 with my parent's move from Los Angeles. Nonetheless, I find going through items and giving them away disconcerting. For me it is even worse, because I have no children to leave our items to and therefore, at times I wonder WHY HAVE ANYTHING!? 

Back to my everyday reality. My dad's speech therapist has my dad doing daily logs to keep track of his entire day (morning, afternoon, evening, appointments, phone calls, therapy sessions and to do's). It is actually a very helpful exercise, and it further confirms how significant my dad's memory loss is! On an aside, I really had no idea that speech therapists work on cognition and memory loss, but they do! This morning, just like every morning, after breakfast, I had my dad pull out his log to complete it for the end of the day yesterday before starting the current day. When you ask my dad what he did yesterday he has NO idea. Frankly he has no idea what he did a minute ago. So he needs a lot of support and coaching through the log. 

We have been watching the TV series, Heartland. It has 14 seasons and counting. We are in season 14, and my parents have watched the show from its beginning. Therefore, you would think the characters would be familiar to my dad. This morning I asked him about the Heartland episode we saw last night. He had no idea! I mean NONE! I then asked him about certain characters and he did not know who I meant. So I went over three characters with him.... a mother (Lou), daughter (Georgie), and the daughter's boyfriend (Quinn). My dad couldn't understand that Lou was Georgie's mom. He understood that Georgie was Lou's daughter, but he couldn't go the other way. In fact, he couldn't keep the three people straight at all, so I pulled out a piece of paper and I started a family tree. That seemed to help. 

What gets me laughing is when I ask my dad what he did yesterday..... his first response will be.... I went walking. What is hysterical about this is he rarely walks unless prodded to move his body. This is not necessarily dementia related, this is historically who he is! But I find it fascinating that in his mind, he is constantly walking and exercising. When I laugh, he thinks I am laughing at his memory loss. I correct him that I am in NO WAY laughing at that, but I just find it funny that he perceives himself doing all this walking. His therapists want him walking once an hour! Ridiculous for a person like him, but I just bought him a pedometer today and I think it will help him see his level of activity or LACK THERE OF, by seeing his daily step counts. 

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