Monday, July 7, 2025Tonight's picture was taken in July of 2009. This photo speaks to Mattie's character and determination. We were home from the hospital and we were working as a family to paint our deck. As crazy as this sounded, we tried to do normal everyday things when we were away from the hospital. Mattie was wheelchair bound and the only limb that wasn't operated on was his left leg. Which was why that leg got nicknamed.... Curious George. Because Mattie could use that leg and foot like an arm and hand! Any case, that day, Curious George was helping us paint the deck. Mattie could have just sat and watched us, but that wasn't his style. He always wanted to be a part of the action and even with cancer, that spirit was never altered!
Quote of the day: Believe in yourself and all that you are. Know that there is something inside you that is greater than any obstacle. ~ Christian D. Larson
When I think of how far I have come since my separation began on September 23, 2023, it is amazing! I can't tell you the hurdles I have had to face, jump over, endure, and address. I have enough content for a book or TV movie. I went from a person who trusted implicitly the person I was married to and never managed the finances, paid a bill, dealt with taxes, or did home maintenance. To what I am now! That said, even when I was married I did a ton of other things! I never sat ideally around while people around me were working. It isn't my style.
In addition to being emotionally devastated by my separation and then divorce, I had a steep learning curve both financially and mechanically (as I had to learn about the house, the property, and every system and gadget in the house). That would be hard enough to face, but I was left to manage all of my parent's caregiving needs alone. That I haven't lost my mind or given up on life yet is remarkable. But each day is still touch and go. Which is why I take it one day at a time. If I think about the future, I would be so distraught, I couldn't function.
Today I had to do another hard thing, I had to call a funeral home about arranging to separate Mattie's ashes. This is where the law and religion don't align, as Roman Catholics are opposed to splitting ashes. Ashes are supposed to remain intact, as ashes represent the body, which is to be respected and is sacred.
It has taken me months to come to terms with this spiritual quandary. Legally I have to do one thing, and spiritually another. The conclusion I have come to is that God has already accepted Mattie into heaven. He knows what Mattie was baptized on July 20, 2002, at St. Stephen - Martyr Catholic Church in Washington, DC and had a Roman Catholic funeral on October 10, 2009 at Holy Trinity in Washington, DC. Both events were witnessed by friends and family.
Since Mattie died, his ashes have sat in this beautiful handcrafted music box. I bought this box from a website in Italy. The box is a work of art, Italian (part of Mattie's heritage), and plays music. Mattie was a human masterpiece and so creative, and when he died, I purposefully selected this unique box. The box also sits on an old fashioned Victrola.
A close up of the box. On top of the box, sits a clay mold of Mattie's foot and his hand. You will notice a plastic spider on the hand. I placed that there, out of whimsy, because Mattie "loved" bugs! He enjoyed teasing me about bugs, and it was our little joke! In between the clay molds is an angel candle. A candle that was given to us by my husband's aunt in memory of Mattie. When you open up the music box, there are many trinkets inside that meant something to Mattie. Things like a Lego piece, butterflies, a compass, and a tiny little plastic mouse. Mattie got this mouse from his occupational therapist, way before he developed cancer. He LOVED that mouse, which he earned for working hard in his sessions. That mouse became a symbol of what Mattie could overcome!
In addition, there is a certificate from the crematorium, as well as programs from Mattie's funeral and celebration of life event. Mattie's celebration of life was an amazing send off and tribute to Mattie. Everything from an art show of Mattie's creativity, a video, oral tributes from family, friends, and Mattie's health care team, a children's room to create memorial stones and messages to attach to balloons (which were then released), food, flowers, and the list went on!
Underneath the trinket tray are Mattie's ashes, a little card with an attachment of a wisp of Mattie's hair, and a bag filled with all the metal prosthetics that were in his body (from all the surgeries to remove bone tumors). Naturally this metal didn't burn! It is hard to believe that Mattie's life and body have amounted to a bag of ashes. Truthfully seeing the bag brings me no peace and still makes me upset.
So you can imagine how I feel about going to a funeral home to split these ashes in half tomorrow. With each day, I say, GOD GIVE ME STRENGTH.
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