Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

April 4, 2015

Saturday, April 4, 2015

Saturday, April 4, 2015 -- Mattie would have been 13 years old today!

Tonight's pictures are a compilation of birthday photos. One for each beautiful year Mattie was with us. It is hard to imagine that a child can be born healthy and be fine up until age 6. This is something I will always grapple with, but of course it makes no sense and I have stopped trying to look for answers to life's impossible and unfair questions. The photos you see are the following: 2002 (Mattie's birth photo at Virginia Hospital Center - which Peter took in the nursery, while I was still in the operating room), 2003 (Mattie's first birthday - the theme was Elmo!), 2004 (Mattie's second birthday - the theme was trains), 2005 (Mattie's third birthday - the theme was Blue's Clues), 2006 (Mattie's fourth birthday - the theme was dinosaurs), 2007 (Mattie's fifth birthday - the theme was Cars from the Disney movie), 2008 (Mattie's sixth birthday - the theme was Scooby Doo), and 2009 (Mattie's seventh birthday was in the hospital and in the photo Mattie was pictured next to his big buddy Brandon). 


Quote of the day: It will take mind and memory months and possibly years to gather together the details, and thus learn and know the whole extent of the loss. ~ Samuel Clemens (Mark Twain) after the death of his daughter Suzy



After a horrific night of sleep, Peter and I had a slow start to our day today. Peter and I both lead very stressful lives on a daily basis, of which we usually don't talk about it or share it with others. Because naturally we feel who is going to listen to us or understand at times. Yet factor in the stress and that today is Mattie's 13th birthday and it is a bad combination. This afternoon we ventured to the Island Cow for lunch. Any one who really knows me, knows I am obsessed with black and white cows! So this restaurant theme was right up my alley. The wait to get into the restaurant was 30 minutes. So we sat outside in this clever chairs. While waiting, a cow bell started ringing and out came servers with a big bowl of ice cream singing happy birthday to a girl named Charlotte. Apparently today was Charlotte's 16th birthday. Peter and I were speechless. We could neither sing, nor acknowledge what was going on. Honestly my natural reaction was to leave the restaurant. I was that overwhelmed or to have an anxiety attack. But I somehow did neither and then Peter broke the tension by.... "well this is depressing!" I couldn't have said it better.

It is depressing because there is no Mattie to sing happy birthday to, no cards to give, presents to open, and a life time of memories to make. It isn't about one day, it is about a whole bunch of days, and a birthday just further signals the loss. CONSTANTLY.


I would have to say that Sanibel Island and Captiva are in my opinion under developed, more natural, and they have a more eclectic feel to them. Certainly in comparison to the East coast for Florida, which I am more accustomed to. To give you a feeling for what I am talking about, this is a photo I took of the outside of the Island Cow restaurant. 
They decorated the awning using Red Solo cups, they have a cage of birds on the right, and of course sand and adorable cow signs everywhere. It is kitchy!


This is a typical road on Sanibel Island! It is in essence a barrier island and there is a lot of scrub brush and trees lining the roads. There is only a one lane road going in and out and you have to take a causeway to get over into the Island, and MIND YOU that cost is a $6 toll! What is deceptive about all of this though is there are a ton of residents on this Island. There are houses everywhere, some small and some estates! But they are tastefully constructed into the land, so you can't see them from the road. 

We then went to visit Gulf Side City Park Beach. Naturally this is the Gulf of Mexico and not the Atlantic. The water is very warm and super calm. But the beaches in Sanibel and Captiva are known world wide for their shelling. I can see why! The shells are everywhere. Walking is very painful in a way. I came prepared with a bag to collect some precious pieces. 



While walking, we came across a cormorant just sitting there. He wasn't moving at all. Clearly he is used to people and didn't mind being photographed. In fact, the first time I saw a cormorant was when I visited Tampa years ago. I associated the West Coast of Florida with these distinct birds. 














Can you tell where the water ends and the sky begins? 














One of my favorite sea birds, the plover!















In honor of Mattie, we constructed this sign made out of the bountiful shells at our disposal.... MJB 13th! Mattie loved the beach, playing in the sand, and collecting seas. This seemed like the most appropriate place to visit today and an activity he would have approved of!















I end tonight's posting with my "Dearest Mattie" letter that I wrote and had on display for Mattie's celebration of life event, after he died. It is a letter that expresses the time leading up to Mattie's birth, how we felt about his pending arrival into the world, and the meaning he gave to our life. The feelings remain, though Mattie is no longer with us, and I believe it is my role to keep these memories alive for myself and those around us. 


-----------------------------------------------------------
MY DEAREST MATTIE


My Dearest Mattie,

It is said that parents love their children right from the moment they are born. However, in your case, our love for you began as soon as we learned we were going to have a baby. In fact, right after seeing your sonogram picture, we felt like proud parents. We posted those pictures everywhere. We shared these pictures with practically anyone who would listen or showed interest, and each September when I taught prenatal development in my undergraduate human development class, out would come your sonogram pictures to illustrate my points. Even my students got a sneak peek at our baby, a baby who would have a profound and meaningful impact on not just his parents but also every community he touched. Daddy and I did not only love you, we FELL IN LOVE with you, and that love grew stronger with each day. Your energy, spirit, love for life, intellectual challenges, sense of humor, and loyalty to your friends and family were only some of the wonderful traits we always admired in you.

This video is a tribute to you and your wonderful, yet short life. It seems fitting as we celebrate you, and say good-bye to your physical presence that I share the story about how you entered the world. The story of your birth had to be one of your most favorite stories to hear, and I found during times when you were reflective, overly tired, or in need of hugs and tenderness, the request for this story arose. In fact, I remember on August 5th, the day we found out that your cancer metastasized everywhere, you and I were sitting in the hospital’s rose garden, and you requested the story. It was almost as if you knew this was going to be a bad day, so in essence we might as well brace ourselves, cuddle, and prepare for this together.

Here is the story I always shared with you. A story Daddy and I will never forget. On April 2, 2002, at 11pm, I decided to head to bed. I was anxiously awaiting your birth, and as your due date approached, I couldn’t help but wonder, when will “the baby” be coming? I was restless and uncomfortable, so while in bed, I began to watch television. I was having trouble concentrating on what I was hearing, mainly because you were kicking up a storm inside of me. At which point, the kicking became so intense, that I literally felt something pop. You clearly wanted OUT, and you were going to kick your way into the world on your terms. Naturally after feeling this pop, I looked down at my tummy, and when I jumped out of bed, I realized my water had broken. This only happens to 25% of moms, and in retrospect, I should have guessed that this was just the beginning of how different our lives were going to be together. I immediately called the doctor and told her what happened. She asked if I was in pain, which I wasn’t, and she instead told me to get a good night’s rest, because my baby was going to be born the following day. Well I can assure you after hearing this news, sleeping was the farthest thing from our minds.

So on April 3, 2002, Daddy and I headed to the hospital and we were admitted to the maternity unit at 8am. The labor process began, but it was a VERY slow process for me, and at times as you moved inside my tummy, Daddy could see your head pushing against my backbone. Needless to say Dr. Mike, the anesthesiologist, became my favorite doctor that day. The hours kept rolling by, and still there was NO sign of our baby! I was getting weaker, I developed an 102 fever, and by 11pm I really had no energy to give birth to you. In addition, to how I was feeling, your oxygen supply was getting cut off, and your chin was positioned in such a way that would make the birthing process almost impossible. So it was at that point that the doctor recommended an emergency c-section. Things began to happen very quickly around me. I was signing paperwork for surgery and Daddy was being transformed by putting on a bunny suit so he could enter the operating room.

I had never been in an operating room before in my life, but I really wasn’t concerned at that point about myself. I was solely focused upon you. I was wide-awake for the c-section, but unable to see the process, which as you know, was probably a good thing. Daddy on the other hand found the whole thing very exciting, and began to videotape and take pictures of the surgery. Literally a team of people surrounded me and I will never forget Dr. Mike, the anesthesiologist who sat by my side, and talked with me and did whatever he could to keep me pain free.

When you have a c-section, your arms are strapped to the operating table, so I couldn’t move, and directly over my head was what appeared to be a rope with a clamp that was holding open my abdominal cavity. Normally by this point I would have passed out, but when it came to you, I developed strength I never knew I had. As the doctor began cutting, and finally got to you, the first thing she said was, “what is this?” That is NOT what you typically hope to hear when having a c-section. The doctor let me know that I had a grapefruit sized tumor on my bladder, and my immediate thought was, did this affect the baby? The next thing I knew, I felt her tugging, and I heard the loudest cry ever. Now here is the part of the story that I know was always your FAVORITE! I would always try to replicate the sound I heard coming from you that day, a sound that will always remain in a parent’s ear. It was a very large WAAHHH! WAAHHH! At which point the doctor told us two things: first, that you were one of the most beautiful babies she had ever seen, and second, that you had quite a set of lungs on you! I concurred with both statements.

The doctor then brought you over to me, and she felt that I needed to be the first person to touch you. So despite my arms strapped to the table, my right hand miraculously reached out and grabbed your tiny, soft, and cute foot. It was a moment I will always cherish, a moment in which I will never forget, and a moment I am so happy you too enjoyed hearing about. Each time I retold the story I felt as if it further bonded us together, and I always enjoyed hearing your comments, thoughts, and reactions to your story.

Seeing you made Daddy very happy! Though he was worried about me, since after the c-section, I had to have bladder surgery to remove the tumor, we both agreed that Daddy should stay with you and accompany you to the nursery. It is there that Daddy got to see you cleaned up, he learned that you weighed 6 pounds and 13 ounces, and that you had high Apgar scores of 8 and 9. Within an instant, Daddy became one of your fiercest protectors, and he cared for you for five days straight while we were in the hospital together. In fact, Daddy is the first person who changed your diaper, and though those were five very challenging days in the hospital, they were days that helped us form our strong family ties. Ties that were imperative and that we relied on for seven years of your life!

Your presence is so greatly missed. Nothing seems the same, is the same, looks, feels, or tastes the same without you in our lives. May you always know that Mommy and Daddy love you, cherish you, and that feeling will remain with us forever and always. Good-bye my Mooshi Moo angel and goodbye Daddy’s best buddy. With love from Una Moon and Daddy!

1 comment:

Anonymous said...

I'm so sorry. Mattie deserved to live. You are both so brave in the face of this pain, every day and especially on his birthday.