Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

April 2, 2024

Tuesday, April 2, 2024

Tuesday, April 2, 2024 -- Mattie died 757 weeks ago today.

Tonight's picture was taken in April of 2003. We hosted Mattie's first birthday party at our home in the city. Only family was invited. At that point in Mattie's development, he did not like to be around a lot of people nor did he like  noise. I distinctly remember having to take Mattie upstairs to his bedroom at some point during the party because there was just too much chaos for him. I remember that moment in time. Back then, I would never have guessed how my life would have unfolded. Or completely disintegrated. 


Quote of the day: Dogs…do not ruin their sleep worrying about how to keep the objects they have, and to obtain the objects they have not. There is nothing of value they have to bequeath except their love and their faith. ~ Eugene O'Neill


I got up at 5:30am in order to get myself ready, make breakfast, get my dad up, showered, and dressed and downstairs before the water irrigation professional arrived at 8am. Honestly by 8am, I was ready to go lie down. 

Since I have NO IDEA how the sprinkler system works, I asked Steve if he would give me a tutorial. After he started up the system, he knocked on the door and I met him in the garage. He was truly helpful. He did not treat me like a dummy, but instead we got into talking about the cells of grass and how they respond to water ONLY at dawn. I learned you should not water grass during the day or evening, as the plants cells are closed. Therefore the cells wouldn't be absorbing water during those hours. Also the heat of the day, can burn grass. In any case, I now get it and have reminders on my phone as to when to turn the system on, I get how it is programmed and will get Steve back when summer starts to re-evaluate if we need to make some changes to the system, in order to either water more frequently or for longer intervals. If I could only find a Steve for all my other issues that I don't know how to solve. 

However, nothing about the morning was easy. My day started with my dad pooping in the shower. Then while I was outside talking to Steve, I left my dad unattended for about ten minutes. In that time, he got up to go to the bathroom and pooped all over the floor. While trying to clean this mess up, the door bell rang, and it was my parent's physical therapist! Truthfully how I haven't lost it completely is a total wonder. 

Once the therapist left, I opened up my email to find that I have a $1,800 Prolia bill. I literally almost fell off my chair given that I checked this and double checked the price before getting this last shot. The infusion center assured me I wouldn't pay more than $275 for the shot. In fact, I opted to go to the infusion center over my doctor's office because of the price reduction. Needless to say, I contacted the infusion center and they will be contacting my insurer to work this out. The person who gave me the shot, gave me her cell phone number. I reached out to her today. I consider this nurse my Prolia angel. As she says, no one should have to pay $1,800 out of pocket for medication that is needed. AMEN!

I also decided to fill out an application for Thrivent's Live Generously recognition. If selected Mattie Miracle could win $1,000. There are many individuals who have been nominated. But I figure we have as much of a chance to win as anyone else. 

To read the nomination and others, go to: https://thrivent.cotribute.co/stories/136052

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