Sunday, July 28, 2024

Sunday, July 28, 2024

Tonight's picture was taken in July of 2009. Mattie was home between hospital stays and wanted to be outside on our deck. Mattie could not walk independently, so we would pick him up and transport him around our home. Mattie absolutely LOVED his sandbox. He kept all sorts of things in his box and would generate creative stories while playing. 

Quote of the day: I wanted love to conquer all. But love can't conquer anything. ~ David Levithan

Last night, I stayed up until 1am to proof read a research paper. Mattie Miracle is participating in a study and I promised the team I would give feedback by the end of the week. But the week came and went, and I did not have a minute to myself to think. So I knew in order to get this done, I had to get my parents to bed and then read and work. It was the only way, but it is hard because by 10pm, I am ready to go to bed. I am chronically exhausted, both physically, mentally and emotionally. 

This was a selfie taken at yesterday's gathering. 

Today we ate brunch outside. Cheryl, our favorite server at this restaurant was sick. So we elected to dine with another great server, who was stationed outside. Typically my parents refuse to eat outside, but I have learned it is important to have the RIGHT server for all our needs. For about five minutes, ONLY five, I was able to take in the greenery and feel calm enough, so that I did not want to jump out of my skin. That calm feeling did not last long. Of course, no meal is ever complete without taking my dad to the bathroom and doing a complete change and clean up job. Each day, I wonder to myself...... what on earth did I do to get routinely punished, always dealing with a crisis, trauma, and loss.