Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

August 5, 2024

Sunday, August 4, 2024

Sunday, August 4, 2024

Tonight's picture was taken in August of 2007. We were in Los Angeles visiting my parents. It was an August tradition! That day we went for lunch at a restaurant called Emilio's. Mattie loved the fountain on their terrace, as you can see by the big beaming smile. How I wish Mattie was with me now. I could use the support and would love such a fierce ally. 







Quote of the day: Heaven doesn’t ignore cries of a broken heart.Toba Beta


It hasn't been a good day! It is 4:20am, and I have NOT gone to sleep! At 6:30pm on Sunday, I rushed my dad to the ER and he had emergency surgery at 2am!

I took my parents out to brunch today. Overall, I would say my dad has been struggling all week. 
My dad has been very lethargic, his appetite has been close to non-existent, and while at the restaurant my dad was having trouble walking. When I got him home, I took all his vitals. At rest, his pulse was over 100, his breathing was labored, and he was running an 101 fever. I gave him a COVID test and it was negative. I contacted his doctor and told him I was going to take my dad to the ER. 


NOTE: Our server gave me a belated happy birthday surprise today. She decorated, got me gifts, and the restaurant gave me a $50 gift card toward today's meal, and dessert! When I look at my photo, I can see just how tired I am.


I got my dad and mom to the emergency room by 7pm. My dad couldn't walk in, so I ran into the ER and asked for a wheelchair. No one helped me, so I had to bring the chair out and get my dad out of the car and into the facility. Mind you I was managing him, bags, blankets, drinks, and holding my mom's hand (as her balance is awful). When we got inside, we were asked to put masks on, and provide IDs. But then the fun began. I met a nurse tonight that I wanted to throttle. This male nurse was doing triage. He took my dad's vitals and from his perspective they were basically normal. He then started to ask my dad questions. If you ask my dad how he is feeling, his natural response is..... FINE! I told this nurse that my dad has dementia and therefore he needs to direct his questions to me. He basically told me to stand down! How I did not leap over the desk and grab him, showed remarkable strength. You know when someone looks at you with a dismissive attitude and basically deemed me as a daughter who was crying wolf. WOW was he wrong and I was RIGHT!

After awaiting about thirty minutes, a tech took my dad's blood in a room right next to the waiting area. She couldn't start an IV in his arm, and landed up going through my dad's hand. Any case within minutes she did a rapid test of my dad's blood and could see that his POCT Lactic Acid score was high, indicating some sort of infection. Back to the waiting area we went, until we were called back about an hour later into an ER room. The ER doctor was a peach! He gathered right away that my dad wasn't tracking him and that he had dementia. He treated me as part of the care team, and we both were on the same page. He ordered a chest and abdominal CT for my dad, a nebulizer treatment (as my dad had labored breathing), and started him on IV antibiotics and Tylenol. The doctor also asked me to catch my dad's urine, in order to run a urinalysis. The urinalysis showed he had a UTI. However, it did not end there. The CT scans revealed that my dad had large kidney stones blocking both of his ureters making it close to impossible to pass urine. So urine was backing up and if I did not catch this early, he would have gotten sepsis and potentially died. It was that life threatening! Thank goodness I followed my instinct, because when I care for someone (I get to know you VERY well), and I assess something is wrong, I am usually correct. 

In any case, at 2pm, I met my dad's urologist. He happened to be on call. He is the one who wanted to do the emergency stent insertion. Because of my dad's infection, they were unable to perform lithotripsy to blast out all the stones (and he has many). So once we stabilize him, I will have to take my dad back to the hospital for two more admissions, to get the stones addressed. We have a long road ahead, and I am so strung out right now, the thought of going to sleep isn't on my radar scope. 

2 comments:

Chris Bentley said...

God bless you. You are such a wonderful daughter and I pray that I will have someone who cares for me as much as you care for your parents when if I ever need it..Or perhaps I will care for them so much so that I can make the decision to grant them thier life and place myself in an assisted living facility. You are a gift to all you love. I understand you so. I am 72. My daughter Jillian passed away in 2010 from retroperitonial synovial sarcoma. she was 20..We fought cancer for 4 years with many years spent living in the hospital per say.....there is no loss so great as that of our children. I somehow found you in 2010 and have followed you since. You have my thoughts and prayers daily. Chris.

Victoria Sardi-Brown said...

Chris,

I first wanted to say how deeply sorry I am to hear about the loss of your beautiful daughter, Jillian. As you and I know VERY WELL, time does not heal all wounds. Losing a child is a forever loss and transforms how we view the world and our future.

I am so grateful that you wrote to me and shared your story. I had no idea you were a long time blog reader and I am humbled that my story, journey, and life touches yours and my words resonate with you. What a gift you shared with me. I am in a very dark place these days and your words sparked my heart tonight in ways I can't describe.

We will never forget our hours, days, months and years in the hospital with our children. Some things stay with you and the one thing I do know is your Jillian and my Mattie brought us together. Thank you for your kind and loving words, for acknowledging my role as a caregiver and for keeping me in your daily prayers. I need them more than ever. Vicki