Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

March 9, 2024

Saturday, March 9, 2024

Saturday, March 9, 2024

Tonight's picture was taken in March of 2009. This was what a typical physical therapy session looked like in the hospital. Pictured with Mattie were his social worker (Denise), his physical therapist (Anna), his child life specialist (Linda), and his running mate, Meg. Meg was a child life intern and she knew how to engage Mattie in his therapy sessions. What she found worked, was being Mattie's competitor. Who could do a lap down the hallway? Of course, Meg hammed it up and Mattie loved it. Mattie always won and Meg would make a big deal out of that. This may not sound like anything noteworthy, but it truly was! Walking for Mattie was difficult and painful and without Meg's diversions and energy, Mattie would have focused on the pain and would have been less inclined to walk. I will always be grateful to all these amazing women who did the extraordinary for us under the worst of circumstances. 


Quote of the day: Animals are such agreeable friends - they ask no questions; they pass no criticisms.George Eliot


Sunny and me on Roosevelt Island. How I remember these walks! I absolutely loved that Island. It holds all sorts of memories of our life, with and without Mattie. It was a special place to walk regardless of the season. 




Can you see all the hyacinths popping up? I happen to LOVE hyacinths. They are happy flowers and their fragrance is beautiful. They are a sign that spring is upon us. They were planted last year in this exact location and when I looked out the window today, they immediately caught my attention. They are a circle of hope. 



This morning I truly did not want to get out of bed. But by 7am, the cat was knocking her head against my bedroom door. Literally it sounded like we were having an earthquake. It was my cue to get up! My dad's physical therapist came over today and though I felt pressure to get my dad showered, dressed, and downstairs by a certain time, her visit broke up a very long day. Remember I am surrounded by people who have dementia all day. So a fresh perspective and someone to talk to makes a big difference to my day. 

Before the therapist came over, my dad had a large bowel movement. I figured we were done for the morning. However, around 20 minutes into my dad's physical therapy session, I heard him moaning. I jumped up because I knew exactly what that meant. Of course he did not make it to the bathroom in time, so I had a big clean up job to do while the therapist waited. I am quite certain dementia and irritable bowel syndrome are a hateful combination. Keeping my dad clean and his skin intact are full time jobs. 

For the past two days I have had pain in my left ear. First it started with a fluttering sound and now it feels like pressure/fullness in my ear! I was beginning to wonder whether I was getting an ear infection and then I focused on my head. Naturally I have been having migraines for weeks and with migraines can come ear pressure. Triggers of migraine ear pressure include sleeping issues, anxiety, stress, and depression. So I fit the bill for all of these things, and frankly it is amazing that I don't have more physical ailments. My head is like a compass. It always alerts me to how the rest of me is feeling. Given the intense headaches I have been suffering, I am clearly not okay. I will be starting my migraine rescue medication and it is my hope I get some relief from this ear issue. 

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