A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



March 22, 2012

Thursday, March 22, 2012

Thursday, March 22, 2012


Tonight's picture was taken in April of 2003. Mattie was a year old and desperate to walk independently. I snapped this picture because he was trying to balance himself while standing upright. Typically this was not something he would try on his own without help. Though Mattie was curious and intrigued by things around him, he was also cautious. I did baby proof some things in our home, but in all reality, I really did not need to, because Mattie seemed to understand that some things were just unsafe and off limits to him.




Quote of the day: One of the most tragic things I know about human nature is that all of us tend to put off living. We are all dreaming of some magical rose garden over the horizon-instead of enjoying the roses blooming outside our windows today. ~ Dale Carnegie  


Peter and I began our day back on Capitol Hill visiting with Senator Kay Bailey Hutchison (R-TX). The Senator is the original co-sponsor of S. 1613, a bill in which Mattie Miracle added psychosocial language to in September of 2011. Senator Hutchinson is the fifth congressional member we acknowledged with an outstanding legislation award this week.


For the remainder of the day, I was home and actually off the computer. I needed a break from working, staring at a computer screen, and just needed down time. Though it was a glorious weather day, that did not motivate me enough to go outside. Mattie Miracle has two events next week as well (an Easter Egg hunt at the Hospital coordinated with Mattie Miracle and the Girl Scouts as well as a fundraiser), and we are beginning to ramp up for our annual Walk. So more is to come and it seems like in total it has been an extremely productive year for us so far! 


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