A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



May 7, 2015

Thursday, May 7, 2015

Thursday, May 7, 2015

Tonight's picture was taken in May of 2006. We were driving to Pennsylvania that weekend on our way to Sesame Street Place. Along our journey we stopped in New Jersey at a wonderful aquarium. I snapped this photo of Mattie and Peter after our visit inside. It was a true weekend adventure for the three of us. We had done many adventures with family members, but this was a first with just the three of us and it was noteworthy. Noteworthy because prior to cancer, we had overcome many other developmental issues with Mattie. But I strongly believe in getting outside support early on and with the help of speech and occupational therapy, by the time Mattie entered kindergarten most people would never have known there were ever any underlying issues. Of course when cancer entered our lives several of them came right back and made treatment very complex, especially when working with physicians who do not take the time to understand the full child and the nature of the issues at hand. 

Quote of the day: Nobody made a greater mistake than he who did nothing because he could only do a little. Edmund Burke



Today Peter and I are packing up and are headed to New York City for two days. Tomorrow we have been invited to give a 90 minute keynote session at the Association of Pediatric Hematology/Oncology Nurses (Metro New York, Long Island & New Jersey Chapters) conference. 

We met the president of the Long Island chapter, Debbie Guigliano, last March when we did a key note presentation at the Association of Pediatric Hematology Oncology Educational Specialists Conference. During that conference Debbie mentioned that she wanted to stay in touch and would like us to come to her conference! It has now become a reality. Tomorrow I will be writing from NY!

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