Monday, April 23, 2018
Tonight's picture was taken in April of 2009. This was a typical occurrence in Mattie's hospital room.... water play. I can't tell you how many bins like this we accumulated over Mattie's extensive hospital visits. This may look like a cute bin. But its purpose is for vomit. A child on chemo doesn't expel a small amount, so such a bin is necessary. But we had bins for medical purposes and bins just for play. As you can see Mattie made a bug soup! Naturally, as Mattie was fascinated with bugs and loved seeing my disgusted reaction! In this photo Mattie was sharing the soup with his nurse that day. All of Mattie's nurses had his number and they did a great job playing along, showing interest, and at times hamming it up.
Quote of the day: You have not lived a perfect day, unless you have done something for someone who will never be able to repay you. ~ Ruth Smeltzer
About two years ago, we began to fund a child life specialist at MedStar Georgetown University Hospital named Morganne. Morganne is bright, very approachable, and presents herself very professionally.
As Mattie Miracle is part of a national childhood cancer alliance, we agreed to fund a child activity room today at the Alliance for Childhood Cancer's Action Day. What is Action Day? Action Day is hosted by the Alliance and it invites parents from around the Country to come to DC and receive advocacy training. After a full day of training, these families visit Capitol Hill tomorrow and talk with staffers about their experiences with childhood cancer and what we as an advocacy community need from our legislators.
While the parents are receiving training, their children have the opportunity to attend a children's activity room. Such a room is necessary because many families travel to attend these Action Days and the children are invited to visit Capitol Hill. Children like going to the Hill but they do not feel the same about sitting still to listen to lectures on advocacy.
So Mattie Miracle funded the activities in this room as well as paid Morganne's salary for the day. Morganne got the kids outside on this beautiful spring day to play with sidewalk chalk.
These two ladies are friends with Morganne. Morganne brought her pediatric nursing buddies from Baltimore to help volunteer at this Children's Activity Room. Wasn't that simply lovely? These are professional women who made the time to do this for free!
Another amazing volunteer! These volunteers worked super hard because there were four of them and twenty children for seven hours! But these women are skilled working with children. Morganne requested all sorts of materials and items from Mattie Miracle to purchase, in order for the children to be engaged and active today. Everything from paint to capes! It sounds like it went very well!
Morganne captured some photos for me today. These photos are shared after receiving permission from their parents!
Can you see the bubbles!? It is the simple things that kids always love!!! I remember all the many bubble wands Mattie had both before cancer and after his cancer diagnosis.
Kids had the opportunity to pick out an item they wanted as well! The Walk keeps me busy, so there is no way I could be at this event, but I am so glad Morganne and her nursing friends represented Mattie Miracle today!
Tonight's picture was taken in April of 2009. This was a typical occurrence in Mattie's hospital room.... water play. I can't tell you how many bins like this we accumulated over Mattie's extensive hospital visits. This may look like a cute bin. But its purpose is for vomit. A child on chemo doesn't expel a small amount, so such a bin is necessary. But we had bins for medical purposes and bins just for play. As you can see Mattie made a bug soup! Naturally, as Mattie was fascinated with bugs and loved seeing my disgusted reaction! In this photo Mattie was sharing the soup with his nurse that day. All of Mattie's nurses had his number and they did a great job playing along, showing interest, and at times hamming it up.
Quote of the day: You have not lived a perfect day, unless you have done something for someone who will never be able to repay you. ~ Ruth Smeltzer
About two years ago, we began to fund a child life specialist at MedStar Georgetown University Hospital named Morganne. Morganne is bright, very approachable, and presents herself very professionally.
As Mattie Miracle is part of a national childhood cancer alliance, we agreed to fund a child activity room today at the Alliance for Childhood Cancer's Action Day. What is Action Day? Action Day is hosted by the Alliance and it invites parents from around the Country to come to DC and receive advocacy training. After a full day of training, these families visit Capitol Hill tomorrow and talk with staffers about their experiences with childhood cancer and what we as an advocacy community need from our legislators.
While the parents are receiving training, their children have the opportunity to attend a children's activity room. Such a room is necessary because many families travel to attend these Action Days and the children are invited to visit Capitol Hill. Children like going to the Hill but they do not feel the same about sitting still to listen to lectures on advocacy.
So Mattie Miracle funded the activities in this room as well as paid Morganne's salary for the day. Morganne got the kids outside on this beautiful spring day to play with sidewalk chalk.
These two ladies are friends with Morganne. Morganne brought her pediatric nursing buddies from Baltimore to help volunteer at this Children's Activity Room. Wasn't that simply lovely? These are professional women who made the time to do this for free!
Another amazing volunteer! These volunteers worked super hard because there were four of them and twenty children for seven hours! But these women are skilled working with children. Morganne requested all sorts of materials and items from Mattie Miracle to purchase, in order for the children to be engaged and active today. Everything from paint to capes! It sounds like it went very well!
Morganne captured some photos for me today. These photos are shared after receiving permission from their parents!
Can you see the bubbles!? It is the simple things that kids always love!!! I remember all the many bubble wands Mattie had both before cancer and after his cancer diagnosis.
Kids had the opportunity to pick out an item they wanted as well! The Walk keeps me busy, so there is no way I could be at this event, but I am so glad Morganne and her nursing friends represented Mattie Miracle today!
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