A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



January 27, 2019

Sunday, January 27, 2019

Sunday, January 27, 2019

Tonight's picture was taken in December of 2008. Pictured with Mattie was Tricia, Mattie's favorite HEM/ONC nurse. I know Tricia meant a lot to Mattie, because one day in the middle of the hospital hallway, he screamed out for her. When she ran over to see what was wrong with him, he told her..... "I love you." High praise from Mattie as he did not use those three words often. Tricia understood that Mattie needed to be a kid and to have some control over the process, which was why she had no problem getting down the floor with him, so he could continue playing through his infusions. 



Quote of the day: ~ Life isn't about finding yourself. Life is about creating yourself. George Bernard Shaw


I would say tonight's quote is quite accurate. However, in the process of creating, I find myself. This week, Peter and I were on a conference call with the Association of Pediatric Hematology/Oncology Nurses (APHON). Mattie Miracle is partnering with this national association to offer three evidence based practice grants. Our hope is that the grants will assist in the implementation of the evidence-based Psychosocial Standards of Care for Children with Cancer and Their Families. 

In any case, while chatting with APHON by phone, we suggested that the grant advertisement also include a video from Mattie Miracle. They loved the idea! Of course you know what that meant?????????? Yes the creation of another video! So today, Peter and I brainstormed! Peter picked out the music and slowly but surely we got this one minute video done. One minute is not a lot of time to convey a message, but I would say, I am getting good at video development!
At the end of the day, it is our hope that this video intrigues Association members enough, that they will apply for a grant! 


Mattie Miracle Evidence-Based Practice Grants:

https://youtu.be/njQoOQTuopE

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