A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



March 25, 2016

Friday, March 25, 2016

Friday, March 25, 2016

Tonight's picture was taken on March 28, 2009. That weekend we took Mattie back to the hospital. NOT for treatment but to attend the opening of the child life art gallery. Mattie was proud to have his Lego story and model he created of an "ideal hospital room" on display. It was a special moment in time, where Mattie was surrounded by all his hospital buddies and for just a brief moment in time was having a good time. These are moments I remember always. In addition, the poster of Mattie's Lego story still hangs today in the hospital's gallery. 


This is a close up of the model on the table above!

In March 2009, I actually took several photographs of Mattie's very clever model. How did this come about? Linda, Mattie's child life specialist asked Mattie and I to write or create what an ideal hospital room and space looks like. Mattie's medium of choice was Legos. Mattie spent about a week designing this with me at our home. I did not do any of the building, but we talked about what he wanted and while talking, Mattie would tweak his model. 

Once the model was created, Mattie and I began playing with it! So it wasn't designed to just be looked at but to actively engage with it! Each of these Lego figures in the photo represented a character (Steve, Paul, Joe and of course engineer Mattie) in the hospital story we created. Each day we would add to the story and pick up where we left off. 






































This is the poster that exists in the Hospital gallery. Linda captured Mattie's story and framed it. I never knew that this poster would remain intact and in existence for longer than Mattie.


Quote of the day: We do not remember days; we remember moments. ~ Cesare Pavese



It was another busy Foundation day. But in the midst of working, I took a break and organized all the toiletry and K-Cup donations that have been delivered to us for our April Item Drive. This is by far our most successful item drive to date! Behind all these items is actually a couch! We are very grateful to our supporters!

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