A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



July 27, 2008

Day Three

July 25, 2008 - After another sleepless night for Pete and Vicki, Mattie went for an MRI and blood work at Lombardi. We arrived at 11am, registered and then went to the Pedriatric Surgery center since Mattie had to be sedated with a drug called Propofol (nicknamed Magic Milk since it looks like milk), which required an IV. Betsy Moran, a RN in the ward preped Mattie for his IV, and then we went up to the clinic (the Pedriatric Hematology/Oncology Center), to play and get the IV put in and some blood drawn.

The IV insertion did not go well, and Mattie was very upset by the whole process. Fortunately, although there was a huge backlog of MRI appointments and things were being delayed, Mattie was taken on time as he was considered a special patient. The MRI lasted 90 minutes, and when Pete and Vicki were called to greet Mattie as he came out of the anesthesia, we were also greeted by five members of the Hematology/Oncology Team who are assigned to us.

In attendance were Jennifer Rabin, RN, the Peds Nurse Manager (she manages the coordination of everyone), Kathy Myint-Hpu, CPNP, our Nurse Practioner who is on point for Mattie's health, Denise Garner, LICSW, LCSW, our Social Worker, and two of the full time Art Therapists, Jenny (a GW graduate) and Jessie, in addition to the Anesthesiologist, Dr. Natarajan, and Debbie the MRI Nurse who managed Mattie's MRI testing. Mattie had a tough time recovering since he was still doped-up and was disoriented, dizzy and sounded incoherent. After about an hour of crying, thrashing about, nose-blowing, a blue flavor-ice and modeling clay, the three of us left the hospital armed with Morphine, Codeine, an unlimited parking pass, and an armful of information.

Once home, Mattie took to our bed, watched several Scooby Doos on the Tivo, and within two hours was outside running around with JJ, an energetic and fun-loving three month old Jack Russell Terrier who belongs to JP de Andino, a trusted and incredibly caring neighbor.

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