A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



November 13, 2017

Monday, November 13, 2017

Monday, November 13, 2017

Tonight's picture was taken on Peter's birthday in 2009. Mattie was in the Hospital recovering from limb salvaging surgery. Yet wanted to make something for Peter to celebrate his birthday. Ironically it was the last birthday they celebrated together. Mattie worked with his art therapists and created a wonderful card and special cake made out of model magic for Peter. This birthday gift was special then as it is special now. The cake still sits on the dresser in our bedroom. Whenever I see it, which is daily, I think of this exact moment in time. 





Quote of the day: As we work to create light for others, we naturally light our own way. ~ Mary Anne Radmacher


Before delivering candy today... we called the police and fire departments!

Special thanks to Officer Dylan Lemley and the Alexandria City team who responded to help us! All are amazing people committed to helping the community!!

An older adult, who spoke no English, was wandering around the sidewalk and walking in the middle of street. She approached me. She tried talking to other people in the neighborhood who were jogging or walking a dog, but no one gave her the time of day. After interacting with her I deemed she had dementia (which wasn't easy since we couldn't verbally communicate). Peter got out Google translate on his cell phone and tried to figure out what language she spoke. He tried everything from Chinese, Japanese, Thai, etc! So I called the police! I was so impressed with how this was handled, that I wrote a letter of commendation to the Officer's superior. Here is my letter:

Dear Sargent Weinstein,

I have great respect for police, fire, and all first responders. My uncle was an officer in NYC, and I am always in amazement with how some people just have a calling and can walk right into harm's way, to bring law and order, and civility to our communities. Today I had a first hand experience working with your police department and felt the need to write to you personally and let you know that Dylan Lemley represents your Department beautifully. 

I am not an Alexandria City resident. I live in DC, but was visiting my friend who lives in the Seminary Ridge neighborhood. While I was loading things from her garage into our car, I noticed an older Asian woman wandering around on the sidewalk and in the middle of the street. People were walking their dogs and passed her, but no one stopped as she was frantically talking to them. When she saw me, she immediately approached. At first I wasn't sure whether she was mentally stable and had to assess her and the situation quickly. She spoke NO ENGLISH, which made this challenging. My husband pulled out his cell phone and he tried Google translate to see if he could communicate with her and help. But she did not respond to Chinese, Japanese, Thai, etc. Given she seemed disoriented, I decided to call Alexandria City police. I have had other issues in Seminary Ridge which is why I have your number programmed into my cell phone. 

Within five minutes of calling and reporting the issue, Officer Lemley arrived. Typically we all have an expectation for the police when a crime is being committed, but there was no crime here. So I got to see Officer Lemley literally work a major problem out with us and in the process observed his kindness and compassion for the older woman who was lost and out in the cold. I could tell that the woman wanted to write down something and communicate to us, so I gave her paper and a pen before Officer Lemley arrived. She kept writing down four numbers. When Officer Lemley arrived, we brainstormed, he called your translator service, but despite best efforts they couldn't understand her nor could she understand them. So literally it was me, Officer Lemley, and my husband working this problem. Officer Lemley understood given her age and the cold that she needed a medic, so the fire department also responded. Once she was safely inside a truck and warming up, we literally started to use google map and find all addresses that started with 4*** (the number she wrote down). Your police officers (now at least two others responded to support Officer Lemley) drove to each of the houses with a 4*** address to see if a missing older adult was reported. Honestly watching your officers tackle this issue was very inspiring. 


I had to leave on an errand after being with this woman for 90 minutes. But I knew she was in good hands. Nonetheless, Officer Lemley is took it upon himself to call me on my cell phone to give me an update about this woman and to let me know she was returned safely home. This meant a great deal to me, and I frankly think this is a human interest story worth reporting. In closing, we strongly recommend Officer Lemley receive a commendation for going above and beyond his duties of being a police officer.


In addition to helping this woman, we also had to load the moving truck with thousands of pounds of candy! That is no small feat, that Peter and I accomplished together. Especially on Peter's birthday. 
Our first delivery was to the Hackerman Patz House. This is a House located on the campus of Sinai Hospital in Baltimore. It is in essence like a hotel or guest house, except the cost is nominal and they provide meals and other amenities while caring for a sick loved one next door at the Hospital. Pictured with me is Amy, the house manager. An amazing woman who has devoted her life to service, not only oversees, and as a nurse, but in managing this house. 
Our next delivery was to our development contact, Geannie, at Sinai Hospital. All 15 bins of candy (and it weighed a ton) were temporarily stored in Geannie's office. Eventually these items will make it onto our Mattie Miracle Snack and Item cart at the Hospital. 
Our last stop in Baltimore today was at the Ronald McDonald House. This group of women truly energizes us as they were SO THRILLED to see us and the candy! They share my excitement about candy and decided to display the candy for the entire day like this so kids who enter the House could check out this scene! 
These ladies captured a photo of Peter and me with Ronald McDonald!

Needless to say, it was a long day that involved getting the truck, loading the truck, driving 90 minutes each way back and forth, unloading candy at each site and then coming back to Alexandria to load my car for tomorrow's deliveries, and then returning the rented truck. A WEEK long of deliveries..... OH MY!

November 12, 2017

Sunday, November 12, 2017

Sunday, November 12, 2017

Tonight's picture was taken on November 13, 2007. It was Peter's birthday and Mattie and I always baked Peter a cake to celebrate. Mattie loved the excitement around a special occasion. Peter loves lemon cake with vanilla frosting, so that was what we always surprised him with. As you can see there were three candles on the cake..... one to represent Peter, Mattie, and me. 



Quote of the day: Was it always to be like this? she wondered. A moment of joy followed by a new sorrow? ~ Soheir Khashoggi


It is hard to believe but today was a CANDY free day! It was thrilling. However, I can't get too comfortable, as the deliveries start tomorrow. We are renting a U-Haul truck tomorrow to drive 90 minutes to Baltimore. We are delivering to Sinai Hospital, the Hackerman Patz House, and the Ronald McDonald House. It will be a full day in the truck and once that candy is unloaded, we will return to the garage and load Tuesday's deliveries into our car. Not sure what is harder, the delivery or the sorting! Delivery requires a lot of carrying and lifting!



In light of the fact that tomorrow is Peter's birthday, we chose to go out to dinner tonight. As tomorrow will be exhausting after a full day of traveling and hauling candy.

Last year, I took Peter to the Hotel Lombardy in DC, and we are returning tonight. It is becoming an annual tradition. Years ago, my parents introduced me to the waiter that works in the cafe and he still remembers my parents and treats us as if we are special. This is an old world hotel with great traditional charm! A true Foggy Bottom gem!

This is the photo I snapped of Peter last year in the Hotel's cafe. As the waiter treated Peter to chocolate mousse to celebrate. If I left it up to Peter, we wouldn't celebrate his birthday. But as I always tell him..... Mattie would not have wanted it that way!

The interior of the cafe. It is small, quaint, wonderful food and service. I particularly love not feeling rushed or having a table of people right on top of me. I will share tonight's photo of Peter, tomorrow!

November 11, 2017

Saturday, November 11, 2017

Saturday, November 11, 2017

Tonight's picture was taken in November of 2003. Mattie was a year and a half old and we took him to a petting zoo in Virginia. As you can see Mattie was absolutely fascinated by the animals!






Quote of the day: Volunteers do not necessarily have the time; they just have the heart. ~ Elizabeth Andrew


Mattie Miracle’s Candy Drive is now closed! We thank all of our supporters for making this Drive a success! We had a final sorting session today and our final count is 70 filled bins of candy! Deliveries start on Monday!
Special thanks to today’s sorters:

Catherine Canterbury
Sara Catherine Canterbury
Peggy Elkind
Abby Doane
Mary Doane
Michael Doane
Helen Kelly
Maria Van Horn
Debbie Keefe
Anais
Kathleen


This is what the garage looks like.... filled with bins!!! While we finished sorting a ton of candy today inside, Peter spent a good portion of the day outside (mind you it feels like 20 degrees outside today) reorganizing bins in rows, so that our deliveries next week will go more smoothly! Each row represents a day of the week and its delivery. 
Our friend Catherine and her daughter, Sara Catherine, joined us later in the day to finish up with sorting and clean up. Mattie and Sara Catherine went to preschool together. 
At the end of the sorting session, we had a drop off of two boxes of candy from Silver Spring, MD. Erickson and Hong Orthodontics were new contributors to our Drive this year, and so happy to have met Monica DeLeon, the receptionist in the office. Monica is delightful and truly wants to support Mattie Miracle. It was lovely of her to personally drive the candy to Alexandria today!!

November 10, 2017

Friday, November 10, 2017

Friday, November 10, 2017 

Tonight's picture was taken in November of 2003. Mattie was a year and a half old, and we took him to Frying Pan Park. Which had farm animals. Right from the beginning, Mattie loved and related to animals. I can still recall snapping this photo! I thought it was hysterical back then, but now it is simply priceless. Look at how Mattie was checking out that sheep..... notice too that his left hand really wanted to grab some wool!


Quote of the day: The unselfish effort to bring cheer to others will be the beginning of a happier life for ourselves. ~ Helen Keller



The sorting continued today! I thought it was our last big sorting gathering, but I was WRONG! There will be another one tomorrow. So far over 50 (27 gallon sized) bins are filled with sorted candy! Major thanks to today's volunteers:

Catherine Canterbury 
Abby Doane 
Peggy Elkind
Debbie Keefe 
Helen Kelly

The delivery of Mattie Miracle sweet treats will be underway next week! Thanks to all our donors and volunteers.


This is a basket of Halloween themed items that we have accumulated through our candy donations. We separate these items, but always give them to MedStar Georgetown University Hospital. Mattie would have loved a handful of this stuff while in the hospital!
Meanwhile this was the candy drive display at Dr. Jill Bruno's office in Chevy Chase, MD. Jill is an orthodontist, who runs a candy buy back program for her patients at Halloween. All the candy that comes into her office, gets donated to Mattie Miracle. Jill also served as a candy drop off site in Maryland for the Foundaton this year!
This is a photo of Jill Bruno with her staff. 
We also want to thank FMP Consulting in Arlington, VA. They are first time candy donors and we welcome them to our candy family. 

November 9, 2017

Thursday, November 9, 2017

Thursday, November 9, 2017

Tonight's picture was taken in October of 2004. Mattie was two years old and clearly dressed as Winnie the Pooh for Halloween. The University I taught at was having a community wide Halloween party and several of my students invited us to attend. Mattie felt very special to be going to a University party and one of the wonderful activities at the event, was the children got to pick a free book to take home with them. Mattie picked a book featuring, Franklin the turtle. Franklin was one of his favorite TV shows, so it did not surprise me that Mattie gravitated to the book and wanted to hear the story inside. 


Quote of the day: Man cannot live on candy alone, but woman sure can. ~ Author Unknown



I spent 7 hours again sorting and organizing candy! I am so tired, I can practically fall asleep standing up. 

Pictured here are our volunteers who helped me today. This may have been our best group yet. Small, but wow what we accomplished together. 

From left to right are: Maria, Catherine, Helen, and Katherine. I know Maria and Catherine from Mattie's preschool! 

Pictured from left to right: Vicki, Catherine, Helen, and Katherine.

Sorting candy may sound like fun, but it is actually very laborious. Candy is heavy to lift and the smell in bulk is intense!
A close up of the sorting process. People ask me.... why must the candy be sorted?! It is sorted for three reasons: 1) storing candy by type preserves the candy longer, otherwise if it were mixed, it would all taste the same, 2) sorting it allows us to inspect each piece as some candy is not appropriate for a hospital setting, given that it is Halloween themed and could have skulls and tombstones on it, and 3) sorting allows staff members at the hospitals to easily restock our snack and item carts. 


This may not look impressive, but so far we have 49 27-gallon bins filled with sorted candy. This is a huge feat. Carrying the candy to these bins, filling the bins and lifting them on top of each other for storage is a pip! There is no other way to describe this. 

My friend, who was with me for most of the day sorting candy, told me she is exhausted tonight and wanted to know how I have been doing this all week? Good question. Mind you I am sparing volunteers the pleasure of carrying the candy and manipulating bins. I do think all this intensive activity explains why I can't keep my head up!

November 8, 2017

Wednesday, November 8, 2017

Wednesday, November 8, 2017

Tonight's picture was taken in October of 2007. Mattie was five years old and attending a Fall Festival. How do you like this HUGE slide? As you can see it was so big, Mattie chose to try it with Peter in tow. I was always the designated family photographer, and fortunately I was! I took pictures of what the average person would say was the mundane. However, now that I no longer have Mattie in my life, it is amazing how even the mundane is special. Childhood cancer does transform your life and perspective. When Mattie was a preschooler, he was deathly afraid of slides. He wouldn't even climb up one, and forget about going down. This was something we worked with him on, to the point that eventually he loved them!


Quote of the day: I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really. ~ Jennifer Starzec


I went to pick up another large candy donation today. It is truly exhausting to pick up candy, transport it, sort it, and then organize it. When you are dealing with thousands of pounds of candy, it requires you to have your wits about you. The candy is sorted, bagged, and then placed in a bin. But I want each bin to have an assortment of candy in it, so I have to make sure when I load the bins, I am paying attention to what I am grabbing. 

Tomorrow, a group of volunteers is meeting at the house where the candy is stored, to help sort more candy. So tonight, I literally unloaded candy from the garage out of six bins and staged it in the hallway. I want volunteers to have easy access to candy, to make this impossible job slightly easier. It is the lifting and carrying of the candy that is a wipe out. 
So this is what my evening entailed..... reorganizing bins in the garage, moving in candy to be sorted, and then moving out these piles of sorted candy and placing it into bins. I am telling you it is a show of grand proportion. 

Unfortunately tomorrow, doesn't look much different than today. 

November 7, 2017

Tuesday, November 7, 2017

Tuesday, November 7, 2017 -- Mattie died 425 weeks ago today.

Tonight's picture was taken in October of 2007. Mattie was five years old and by this point, absolutely LOVED Fall Festivals. This cute photo was taken at Cox Farms and Mattie thought this cut out was adorable. A colorful corncob with wheels. After all, Mattie loved anything with wheels. It is hard to believe that Fall Festivals continue on, that families still participate in these events all over our region, and yet for us, this all seems like it happened in another life. In another world. 





Quote of the day: If I were given the opportunity to present a gift to the next generation, it would be the ability for each individual to learn to laugh at himself. ~ Charles M. Schulz


Honestly how can you not laugh, when you see the picture below?

We continued to receive MORE candy today and therefore I am still processing it! This was me yesterday in the garage working. It truly captures the chaos and volume I was working with. 


Believe it or not, tomorrow I am picking up MORE candy, and I know of several other donations we are waiting on! So it continues! If you wonder what I am up to for the next two weeks.... figure I am dealing with candy and delivering candy!

November 6, 2017

Monday, November 6, 2017

Monday, November 6, 2017


Tonight's picture was taken in October of 2004. Mattie was two years old and was at a Fall Festival. Mattie had a fascinating personality. He approached certain things with caution, like this long and steep slide. Mattie may have been cautious, but was intrigued and with support was eager to try going down the slide. As you can see he did this sitting on Peter's lap. By the following year, Mattie wanted to go down these slides himself. 







Quote of the day: Far be it from me to stand between a girl and her Skittles. ~ Sarah Weeks


This was the team of volunteers who helped sort candy for several hours today. 

We thank:

  • Claire and her son Connor (who at 8, apparently loves sorting candy and can do it for hours)
  • Peggy 
  • Liz and her son Jackson
  • Laura
  • Karen


Before the team left, I snapped a photo of them surrounded by candy!











Then we had several candy deliveries including one from my friend Margy (who collected candy from Burke, VA), and Ellen (a mom who lost her child to cancer; collected candy from her neighborhood in Arlington, her preschool, and a Brownie Troop).

Pictured left to right: Vicki, Laura, Ellen, and Margy
You can see some of the volume I faced today. 

The volunteers all left at 12:30pm, and it was at that point, I started working strategically. I bought twenty additional bins at Home Depot today, and then worked in this garage until 7pm! 
Candy everywhere! It can get overwhelming, but I don't take breaks because I would never have accomplished all that I did today if I had. 
You can see all my new bins. Home Depot was wonderful today. We ordered 20 gallon bins, but they did not have what we ordered on line, so they gave me bigger bins at the same price as the smaller bins. They even carried them to my car. They were very helpful!
So after 7 hours of intense work, and I assure you lifting bins and candy is exhausting, this is what the garage looks like tonight. Of course more chaos will ensue as more candy gets delivered! 

I am very tired tonight, but I am left wishing that fundraising was an easy as collecting candy! 

November 5, 2017

Sunday, November 5, 2017

Sunday, November 5, 2017

Tonight's picture was taken in October of 2005. That year, Mattie was invited to the George Washington University's community Halloween party. Where kids from all over the DC community came to the University to get candy, participate in activities, pick out books of their choice, a have fun. Peter snapped a photo of me and Mattie walking to the event. Don't you just love his calico costume with the tail dragging along on the pavement? 


Quote of the day: One of the secrets of a happy life is continuous small treats. ~ Iris Murdoch


It was a damp and cool, not to mention rainy and gray day in DC. But Sunny is like the US postage service! He needs to walk regardless of the weather. So we headed back to Roosevelt Island. While on the Island, I snapped several Fall photos!
The reds and oranges were popping out today, despite how gray it was outside. 
Peter photographs this tree at all times of the year. It seems to keep track of the seasons for us. 
In the middle of the water, was a Great Blue Heron, wading in the water. It is large to see, but it is the big gray lump in the middle of the water. 
Now this is a more unusual sighting at Roosevelt Island.... deer (do you see it?). We saw five deer today and Sunny was besides himself. If he wasn't on leash, it wouldn't have been pretty. We held him back, and he was barking up a storm. Sunny has a very big hunting and herding instinct. 
Leaves lined all the pathways, but their colors are what caught my attention. 
You can't miss this bright yellow tree! Sunny wasn't too thrilled with our frequent pauses to snap photos, but on the Island, there is a lot to keep all of us happy. Which is why it was one of Mattie's favorite places to visit. We practically walked here every weekend. 
Sunny was on the look out for more deer! Once he saw one, he was motivated to find others. 
Typically I do not photograph fungus, but look at this wonderful composition on the log with the leaves. 
Candy continues to come in! This bunch came from Beth Parker. Beth used to be a Fox 5 newscaster and did many stories on Mattie Miracle. She also covered our Candy Drive once. Since that point in time, Beth and her neighborhood contribute annually in November. 







This was a photo sent to us by a mom of a St. Joseph's School student. St. Joseph's is located in Herndon, VA, and this is their first year they have participated in our drive. Their school has both collected and sorted candy! Here is a photo of some of the dedicated sorters!