A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



April 17, 2023

Monday, April 17, 2023

Monday, April 17, 2023

Tonight's picture was taken on April 4, 2009, during Mattie's 7th (and last) birthday party. This party was held in the hospital's playroom and it was a very exciting day for Mattie. He decorated the playroom in the morning and anxiously awaited his friends to visit after school. Mattie's art therapists created this roach themed card for him because they knew how much I hated them and how much Mattie enjoyed seeing me lose it over even hearing even the name of the bug!


Quote of the day: Kindness is an electrical spark of life that runs through all kingdoms and has a reciprocal action when shown to others. ~ Joe Hayes


Though Peter started his new job officially last Monday, today he was introduced to all the members of the company. I am so glad it was a positive day for him and that people can see he really has the "heart" for the company. As Peter knows that medical care is NOT just about the medicine. His passion for this exudes from him and I am so glad he is now at a company that can appreciate his various talents and gifts. 

Peter has been under a great deal of stress with both our living arrangement and looking for a job. In January, when he went to visit his parents in Boston, he came back to Virginia with what appeared to be a cold. He had congestion, a cough, and a terrible post nasal drip. These symptoms have cycled from mild to more severe. In fact, after his second trip to Boston to visit his parents and then the Seattle trip on top of that, Peter's symptoms have become debilitating. Nothing seems to be helping him from cough syrup to cold medications. 

Today I reached my maximum threshold of anxious and concerned about his symptoms. Mainly because they aren't going away, Peter is starting a new job, and he can't be debilitated with congestion and coughing. So after I got myself showered and dressed, while making breakfast, I called his internist and got an appointment for him tomorrow. On top of that, I took my mom to her pulmonologist today. This is a doctor I absolutely LOVE. He is competent, listens, gets to know you, and returns his messages himself in a very timely fashion. In fact, when my mom was ill for a month, he is the ONE who helped me get her better with intense rounds of antibiotics! 

Any case, after discussing my mom's health today with the pulmonologist, I told him about Peter. He could hear my concern. This doctor is sensitive to the fact that I am a caregiver to both parents, and could probably put two and two together to know that Peter is an important part of my equation. So literally he handed me a piece of paper, asked me to write down Peter's name, birthday date and phone number, and he told me he would talk to his office manager about getting Peter in as a new patient ASAP. 

So it is 5pm now, and Peter has an appointment tomorrow with the internist, will get a pulmonary function test on Friday and sees the pulmonologist on Monday. Needless to say, I will be attending these appointments with Peter. Certainly he can't manage these meetings himself, but with my level of anxiety, I need to be part of the process to calm down. 

No comments: