Tonight's picture was taken in June of 2002. Mattie was two months old and Peter captured this peaceful moment! I emphasize, MOMENT! Mattie was resting here because he just ate. It was the sure way to calm him down. Mattie was into power naps and my joke was he was born "on!" What I learned early on was Mattie responded to fresh air and being outdoors, so no matter the weather we were outside and in it!
Quote of the day: Instead of worrying about what you cannot control, shift your energy to what you can create. ~ Roy T. Bennett
This morning, after I dropped my dad off at his memory center, I had a conference call at 11am. I told my mom, and I could see she wasn't happy about it. Since it was a Zoom call, I asked her not to do walking laps in the room next to my office. This truly bothered her and she was muttering under her breath. Keep in mind that I rarely schedule calls because my days are over scheduled and over programmed to manage my parents needs. I would have hoped my mom would have thought beyond herself for a minute and embraced the fact that I was having a call about the Psychosocial Standards of Care. Something that is important to me and to Mattie's Foundation! Forget it.
I had a very productive call with a social worker in Kentucky who is implementing the Standards into practice at her hospital. I loved hearing the details and encouraged her to write and publish her work. She has designed a road map that I know other hospital systems would find intriguing and perhaps this would inspire other institutions to follow suit. After I got off the call, I tried to tell my mom about what I learned and she wasn't having any of it. She decided to ignore me. I don't care for that behavior and I confronted her head on. Needless to say this call reminded me of the amazing work that Mattie Miracle has done to date and as this clinician said to me.... we have changed the way care is provided to children with cancer. This is Mattie's legacy!
No comments:
Post a Comment