Tonight's picture was taken in October of 2008. I remember this moment in time like it were yesterday. It was the weekend before Mattie's first limb salvaging surgery. We were all on the edge, dealing with intense anxiety, and fear. That day, we took a local road trip to the Inner Harbor of Baltimore. We walked around, toured a train museum, and had lunch by the water. As you can see, Mattie was holding a Lego structure in his right hand. Mattie never walked empty handed, it was one of his tell tale signs!
Quote of the day: Everyone must leave something behind when he dies, my grandfather said. A child or a book or a painting or a house or a wall built or a pair of shoes made. Or a garden planted. Something your hand touches some way so your soul has somewhere to go when you die, and when people look at that tree or that flower you planted, you’re there. ~ Ray Bradbury
On this slide, you will see a photo of Mattie and a picture of us with our research team back in 2012 at our Psychosocial Symposium on Capitol Hill. From that Symposium, we charged the research community to develop evidence based Standards of Care. Presenting in this photo is Dr. Lori Wiener. I had the good fortune to meet Lori in 2011, and from there our collaboration began. It is thanks to Lori's leadership that the Standards were developed and published. Lori is one of the gifts Mattie left behind for us. Whenever I wonder what impact does Mattie Miracle have on cancer care, I get photos like this to remind me. It is indeed significant. We learned many lessons from Mattie and these lessons are now guiding the way cancer care is being delivered.
https://childfam.wixsite.com/siblingblueprint/copy-of-timeline-for-services
No comments:
Post a Comment